Please Help Our Son Alex Get His Life Saving Surgery Overseas !

$62,088 of $140,000 goal
Given by 544 generous donors in around 6 months

We are raising money to pay for Alex's medical costs for life saving surgery overseas

Auckland

Hi Wonderful People,

We really didn’t want to have to do this but unfortunately Alex’s condition has gone to the next stage & currently there is no treatment in NZ. We need to go to Germany for a specialised surgery in order for him to live his life.

Alex is 16 and has been diagnosed with the genetic connective tissue disorder Ehlers Danlos Hyper-mobility which affects your entire body. joints, bones, soft tissues, blood vessels and internal organs. Alex’s condition has now deteriorated and includes Abdominal Vascular Compression Syndrome so he struggles to eat & drink, has chronic gastric pain, constant nausea, is starting to find it hard to walk or stand for long & suffers from regular migraines.

He is kind-hearted, has a great sense of humour, is an awesome big brother, loves cars & Formula One & is a great person to have on your quiz team as he knows a lot about random stuff (which is amazing as he hasn't been able to do regular school for the last 3 1/2 years).

When he turned 13 he started passing out, couldn't regulate his body temp, had chronic nerve pain, fatigue and severe brain fog. Alex was diagnosed with Postural Tachycardia (POTS) which affects the autonomic nervous system & the ability to pump blood around the body, giving you low blood pressure and a high heart rate.

Alex's joints started dislocating which triggered a range of new and on-going symptoms. He was eventually diagnosed with EDS and most complex cases like Alex end up having Vascular Compressions.

Everyone is doing it tough these days so any amount you can donate is greatly appreciated. By spreading the word about Alex’s page we gain awareness of these brutal health conditions that people are suffering from.

To others with this condition, you are brave, courageous, strong & resilient. You are all legends and always have hope.

Jan Kynoch's involvement (page creator)

I'm Alex's Mum - Jan and together with his dad Andy & his sister Hannah we created this page and from our family to you a massive thank you for all your help, kindness and generosity.

Use of funds

Any Funds raised will be used towards the cost of flights, accommodation, transport, specialised medical treatment, hospital stay and recovery rehab. Going by the others this is estimated at $140,000

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Latest update

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Thank You Thank You Thank You !!!!!!!!  23 January 2024

Happy 2024 Everyone,

We hope your year has started off well for you and your loved ones. As there is not long to go until Alex’s fundraising page ends we wanted to do our final update.

From the bottom of our hearts a massive thank you from Andy, Alex, Hannah and myself - we have been overwhelmed by all the love, support and generosity you have all shown us.

We can never repay you all for what you have done for Alex but please know we are so very grateful. Alex turns the magic number of 17 that we have been waiting for at the end of Feb, so after this if changes haven’t been made here in NZ it’s off to Germany for his life changing operation.

In the meantime, thanks to all of you wonderful people Alex continues to be able to get the medical care he needs for his conditions. He is getting to see a Gastro specialist in the Waikato that has an interest in these rare conditions, has started a specialist medical physio rehab programme, gets his much needed regular joint stabilising injections and to go to a specialist periodontist as connective tissue disorders unfortunately affects all the teeth and gums.

So much love and big hugs to you all, keep safe, happy & healthy and make sure you do that mantra - Live, Laugh, Love and always have hope.

Jan, Andy, Alex & Hannah xxx

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Latest donations

Guest Donor
Guest Donor on 16 Jan 2024
Private
Jan Kynoch

Happy 2024! Thanks so much for donating to help our son Alex get the surgery he needs, it means so much to us and are overwhelmed by your kindness and generosity. From our family to yours a massive thank you. Take care and have a great week ahead. xx

Jan Kynoch
Geoff
Geoff on 24 Dec 2023
$1,000
Jan Kynoch

WOW, you are such a legend for your kindness and generosity and we really appreciate you doing this for our son Alex. We wish you a very Merry Christmas and may 2024 be the best ever year for you and your loved ones. x

Jan Kynoch
Guest Donor
Guest Donor on 20 Dec 2023
Hello Alex and Jan and family. Let's keep the ball rolling and get over the half way amount.
$1,000
Jan Kynoch

You are our Christmas Angel for doing this for our son Alex, we can never repay everyone's kindness and their generosity but please know it means so much to us and we are so very grateful. Wishing you all the very best for a wonderful new year ahead. xx

Jan Kynoch
Sarah
Sarah on 20 Dec 2023
Thinking of you all.
Private
Jan Kynoch

Thanks so much special lady - You are so amazing for donating to help Alex, we hope you had the most amazing Christmas and may 2024 be the best ever for you - lots of fun, happiness and above all great health. Love Jan, Andy, Alex and Hannah xx

Jan Kynoch
Alison Ellisdon
Alison Ellisdon on 10 Dec 2023
Hi Jan, my love goes out to you all. I’m just around the corner if you want to catch up over a cuppa. If you need some airfare advice give me a call hun ❤️
$200
Jan Kynoch

Hello Beautiful lady, you are so amazing for donating to help Alex, I would love to catch up for a cuppa. Wishing you and your family are wonderful Christmas. Love Jan xxx

Jan Kynoch

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Created by, and paying to a verified bank account of, Jan Kynoch on behalf of Alex Kynoch
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This campaign started on 15 Aug 2023 and ended on 14 Feb 2024.