Please Help Our Son Alex Get His Life Saving Surgery Overseas !

Hi Wonderful People,

We really didn’t want to have to do this but unfortunately Alex’s condition has gone to the next stage & currently there is no treatment in NZ. We need to go to Germany for a specialised surgery in order for him to live his life.

Alex is 16 and has been diagnosed with the genetic connective tissue disorder Ehlers Danlos Hyper-mobility which affects your entire body. joints, bones, soft tissues, blood vessels and internal organs. Alex’s condition has now deteriorated and includes Abdominal Vascular Compression Syndrome so he struggles to eat & drink, has chronic gastric pain, constant nausea, is starting to find it hard to walk or stand for long & suffers from regular migraines.

He is kind-hearted, has a great sense of humour, is an awesome big brother, loves cars & Formula One & is a great person to have on your quiz team as he knows a lot about random stuff (which is amazing as he hasn't been able to do regular school for the last 3 1/2 years).

When he turned 13 he started passing out, couldn't regulate his body temp, had chronic nerve pain, fatigue and severe brain fog. Alex was diagnosed with Postural Tachycardia (POTS) which affects the autonomic nervous system & the ability to pump blood around the body, giving you low blood pressure and a high heart rate.

Alex's joints started dislocating which triggered a range of new and on-going symptoms. He was eventually diagnosed with EDS and most complex cases like Alex end up having Vascular Compressions.

Everyone is doing it tough these days so any amount you can donate is greatly appreciated. By spreading the word about Alex’s page we gain awareness of these brutal health conditions that people are suffering from.

To others with this condition, you are brave, courageous, strong & resilient. You are all legends and always have hope.