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Please Help Save My Daughter's Life

  • Sadly Brennagh Lost a Brave Fight

      18 May 2018
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    My apologies for not being here sooner. Let me first thank you all so very much from the bottom of my heart on behalf of Brennagh, myself, my husband and our family. Your support allowed us to go above and beyond our system for a brief time and we are eternally grateful.

    We are griefstricken beyond words to have to inform everyone Brennagh lost her battle with malnutrition on the 17th of March, her brother's birthday, another blow.

    Equally sad is it is something that should never have happened to a child in New Zealand.

    We have no time to grieve Brennagh's death as reality after the lost of your child hits pretty quickly and your life, your world and your job vanishes in an instant. One must pull it together and quickly. At 52 and having been a fulltime mum most of my life one could say my life has been completely ripped inside out and I am back in the job market. Interesting times ahead.

    Brennagh was my world 24/7 and I am still blessed to have all of her brothers. So as much as I would like to just break down and cry for my only daughter and take some time, I can't. Too many things need doing and being busy is probably a good thing.

    I miss Brennagh more than words can say.

    Thank you all so much.

    RIP ANGEL 20/06/2006-17/03/2018

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  • It's slow and I am scared.

      18 January 2018
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    Whilst Brennagh has had a good day todayI have moments where I look at Brennagh hoping I have a medical breakthrough for her. If I allow myself to be swept up in the emotional fear of losing my only girl amid the realisation she is beyond NZ medical help I feel such a gutwrenching helplessness. And then she looks at me with a trust only a child unconditionally puts in their parent and I can't allow myself to feel helpless for too long. Brennagh's life depends on me when I am the only one searching for a solution.

    She didn't ask to be the only medical case of her kind.

    I never intended being a medical researcher in a new medical field. I just wanted to be a mum.

    However I am very grateful to everyone who is on this lifesaving mission with us. I am thankful for the many who are prepared to think outside the box and help us explore new ideas.

    The difference in Brennagh between September to the end of Oct was significant. Her improvement, whilst slow is also noticeable to date.

    Brennagh is also sleeping better allowing me time to research, brainstorm ideas with others and seek out alternative options not available to us currently.

    We continue to appreciate all the support on this unknown journey. We wouldn't be here still without many of you have have believed my daughter deserves and equal chance at life.

    Love you all very much.

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