Join Raising the Bar: a 6-week challenge to better yourself while funding gene therapy for people living with Sialidosis.
Nationwide
Dear Sponsor,
Thank you for supporting a participant in the “Raising the Bar - A Better Me for a Better You” 6-week challenge!
Your generous sponsorship not only motivates and empowers someone to pursue a meaningful personal goal, but also helps make a real difference in the lives of those living with Sialidosis. All funds raised go directly toward advancing gene therapy treatments that offer hope and healing.
As a token of appreciation, you’re also entered into our special sponsor prize draw—because your support matters.
Together, we're building a better future. One goal, One life at a time.
Thank you for being part of this journey.
A better me for a better you.
Warm regards,
The Raising the Bar Team at Cure Sialidosis NZ
What is Sialidosis anyway?
Sialidosis is:
A rare genetic disease affecting normal nerve, muscle, vision, speech, and mobility function.
It gets worse over time, so in that way, it's like looks a little like Parkinson's or MS.
There is no generic treatment or cure... yet! – Although there is proven gene therapy ready for human trials that we are fundraising towards.
Visit www.CureSialidosis.org for more information.
Funds raised through the Raising the Bar challenge will be used to support the development and delivery of gene therapy for Sialidosis.
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