Support for Raynor and Ronan’s speech journey.
Upper Hutt, Wellington
We are looking for help to assist with the costs in supporting my twin nephews speech journey and ensuring their family home is safe for them.
Over the last 6 years, my family and I have done everything we can educate ourselves in order to help them navigate their way through life with a neurodevelopmental condition.
The boys were born at 32 weeks and diagnosed with autism spectrum disorder at the age of 3 years old, however signs would show a year or so earlier. They are now 9, Raynor is only partially verbal & Ronan is non-verbal however both boys cannot competently communicate through speaking language leading to a constant frustration and self harming meltdowns. They have both been referred for speaking devices, however there is approximately a 2 year waitlist which means they would be 11 years old before they could get this support. However my sister does have the option to fast track this referral, at her own cost.
In addition to this, they have also been diagnosed with Pica - A compulsive eating disorder of inedible objects such as plaster, paint, dirt etc. My sister has two old sheds at their family home that have asbestos. The boys often play outside and it is extremely hard to keep them both away from picking at the walls, structure etc.
Any funds that raised will go towards their life changing speaking devices and the removal of the asbestos and sheds to make their family home safer to live and play.
Raynor & Ronan are my nephews
Kiriana is my sister and their mother
Speaking device, tools and subscription: step by step with levels, c pen readers, wireless voice amplifier & read speaker text aid subscription as well as the removal of asbestos/ sheds at their family home
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