End of Day 2 at CHOC - day 3 since being diagnosed...
Today was a good pain day. We only had 1 minor cry as we woke up but we now get Paracetamol every 6 hours and that seems to do the trick.
We have diarrhea due to the antibiotics and I think I have changed 10+ nappies since 1pm, bedding changed 3 x before we got disposable liners on and since then I have changed liners 5 x too. Each nappy no matter what has to be saved to be weighed for liquid out put as we need the kidneys to function well for the start of chemo Monday.
But he remains as friendly and chipper as can be expected...
Rileys 2nd Oncologist came by today and gave me lesson no2 - The treatment plan and chemo meds that will be used, side effects, duration and 4 packs of paperwork to read and sign.... i got to read up to page 3 of pack 1 lol One day at a time!
The treatment starts officially Monday 20 April:
1. First time ever going to theatre, having anaesthetic.
2. Lumber Puncher to test levels of leukemia cells in Rileys spinal fluid / brain fluid.
3. Bone Marrow biopsie to test and officially confirm that it is definitely ALL, how advanced it is and how hard we need to treat it these first 4 weeks with chemo.
4. First dose of chemo will be injected into his spinal fluid in theatre because the chemo meds dont penetrate the spinal/brain fluid so well.
Depending on outcome of tests from this, he may or may not need this spinal fluid dose to be given this one daily for 4 weeks.
This was a lot to take in and he shared more with me but its too much for now. I will leave you with saying its been a good day for Riley and aslong as Riley is good, mum will be ok ♡