Riley's Mission

Our beautiful boy has had a pretty settled day, since the nasal vent tube went in at 6am this morning hes has no spontaneous destats going from 100 to 7 and needing bag. Which is another small bonus. He had a another echo today and his VSD remains unchanged. He also had a central line put in his neck as his other lines tissued and hes so puffy from being on the ventilator that they couldn't get them in his arms. Hopefully he has Nuro come tomorrow and possible a repeat MRI.

Scott and I both talked to this amazing guy today here to support us and listen to us vent and what not. The most difficult thing from the past few days is leaving all our family friends and support. But we love you all from afar.