Back to page

23 yr old Fighting Stage 4 Melanoma Cancer

  • Update

      29 August 2016

    This Saturday the 3rd of September, the funeral for Jeffrey Paterson will be held at Liston College at 10.30 am

    Jeff's family and friends invite you to attend the ceremony, where we want to celebrate his life.

    There will also be a live-stream right here on Facebook for those who are unable to physically attend.

      0 comments  |  Login to leave a comment
  • Update

      27 August 2016
    Main image

    It is with a heavy heart that we tell you that yesterday evening Jeffrey John Paterson slipped away peacefully surrounded by his family, just as he had asked to go. He was such a fighter to the end, and we know that he wants us to support each other through this time.

    We are so proud of all of Jeffie's achievements, from his relationships with his friends and family, his long nights studying at university, his skilful guitar and surfing, and his sacrifice for the melanoma community.

    Jeffie's message to us would be to stay strong, and thank everybody that had played even a small part in his life journey.

    For the last time, peace from Patt.

    Xx

      1 comment  |  Login to leave a comment
    • 29/08/2016 by Christine

      Dear Patt and family,

      I am so sorry for your loss. Your strength throughout this time was a credit to you, many others would have crumbled.

      Jeff was an amazing example of someone having wisdom beyond his years. Although he is at rest now, he will always remain with you.

      Love and light.

      Chrissie

  • Update

      3 August 2016
    Main image

    On Monday afternoon, we went in to see Jeff's oncology team at the hospital. The news we got really wasn't what we wanted to hear.

    They have decided to not continue with further treatment, as they believe that Jeff is too sick to handle any side effects that will come with Opdivo or Keytruda, and he wouldn't last long enough to see any improvement in health.

    Hospice has been involved for a couple of weeks now, and will continue to help us nurse him at home for as long as possible. Lucky for him, although physical stuff is challenging at the moment, it is still our Jeffie in there, and he has come to terms with his situation.

    We are so so sorry to have to tell you this heartbreaking news, it's certainly not easy to hear and see a loved one suffering. Getting these drugs funded and then not being able to use them himself is hard to swallow. We know however, that Jeffie has helped so many people with their battles, and they will be forever grateful to his heroic fight, and if making him suffer any more is the alternative, it's just not worth it.

    We want to take this opportunity to thank each and every one of you who has loved Jeff. He is such a beautiful human, and that is reflected in the people he surrounds himself with, his friends and family. Thanks also to the medical team at Auckland Hospital, we know you have done the very best you could have with the cards dealt.

    Love, memories and peace

    From Patt

    xx

      1 comment  |  Login to leave a comment
    • 04/08/2016 by Christine

      My heart felt thoughts and love go out to you Jeff and family. Time now to just be together.

      Chrissie

  • Update

      20 July 2016
    Main image

    Yesterday afternoon Jeff went to see his radiation oncology team for the results of his latest scan. It is too early to have any concrete results on the effects of his current radiation so we weren't expecting much.

    Unfortunately this routine scan also uncovered another tumour in Jeff's brain on the other side (left) of his brain stem. Although it's only 5mm at the moment, his last scan was only 3weeks ago so it is growing fast.

    He is still completing his radiation this week, and then we are waiting on a plan to move forward.

    Sorry for the bad news, it's definitely not what we wanted to hear, and is a big shock to everyone.

    Peace from Patt, Gabbie and family.

    Xx

      0 comments  |  Login to leave a comment
  • Update

      13 July 2016
    Main image

    These past two weeks have been rough on Jeff, he has been in and out of hospital trying to get his nausea and vomiting sorted. He is finally home now with a syringe pump that is attached to him 24/7, to deliver his anti nausea medication through, so we are hoping that stabilises him a bit!

    He has also started radiation therapy on Monday, due to finish Friday week, and the plan is to ween back down off steroids after the effects of the radiation wear off a bit. He needs to be down to less than 2mg of steroid before he can start Opdivo or Keytruda, which may take a little time.

    Jeff is also finding it hard since the operation to walk by himself, and has weakness in his right side. He has completely lost control of the muscle in the right side of his face, which will most likely be permanent. These changes are particularly hard for Jeff to deal with as he hasn't been able to pick up his guitar in a while, which has made him feel himself after his other surgeries.

    Last weekend his brother David and I managed to get him down to his little piece of heaven, at the batch in Little Huia. Although we only stayed the day, I think he really appreciated the change in scenery.

    So we will keep on trucking on...

    Peace from Patt, Gabbie and Family xx

    A note on the change in funding to Keytruda and Optivo

    Now that the government has made funding available, Jeff no longer needs to pay for these immunotherapy treatments himself. However there are other ongoing costs associated with his illness, such as complementary drugs, integrated medicine treatments and pharmacy expenses; supplements and transport costs. Your donation will go straight to Jeff and help him pay for these costs. We thank you for your ongoing support.

      0 comments  |  Login to leave a comment
  • Update

      21 June 2016
    Main image

    Jeff has moved to a ward from intensive care, and is doing well. He is slowly regaining balance and swallowing as those two neves start to heal. He is still quite dizzy and deaf in his right ear, but we hope that with time they will heal too.

    Jeff's MRI results back this morning, and they said 90% of the tumour was taken out, doctors were really happy with the results. The part that is still left in there they said was the right decision to leave as his speech and swallowing would be much worse if they had touched it any more. Hopefully off steroids in 10 days - 2 weeks and straight onto Optivo/Keytruda. It won't be an easy road to recovery, it will take practice, physiotherapy and patience. Luckily Jeff is such a trooper, he will do great.

    Jeff is currently very sleepy as he recovers, so is only having short family visits, but hopefully when he is home and settled he will have more energy for friends.

    Thanks for all of the beautiful messages that continue to stream in every day, we are so so grateful for everyone's support.

    Peace from Patt, Gabs and Family

    xx

      0 comments  |  Login to leave a comment
  • Update:

      18 June 2016

    Jeff is finally out! We are told that the procedure went well, the tumour was larger than anticipated, so it took a little longer. They removed the majority of the tumour, apart from a small amount which is too close to the brain stem to remove safely.

    We have just been to see him, he is doing better than hoped, a bit puffy and still drugged up, but sitting up and cracking jokes and he even ate a little dinner!

    Jeffie you are such a strong amazing man, you are a fighter and that really showed today. ????

    Thank you to the surgical team who looked after him, family and friends for your ongoing support.

    Peace from Patt, Gabs and Family xxx

      0 comments  |  Login to leave a comment
  • Update

      16 June 2016
    Main image

    On Sunday morning Jeff was admitted to Auckland Hospital with worsening symptoms of nausea, dizziness, loss of hearing, taste and facial muscle control on his right side, as well as blurred vision.

    He had both CT and MRI scans which concluded that unfortunately the radiation surgery that we went down to Dunedin for didn't work as hoped. The Tumour in his brain is now 3cm and pushing on his brain steam. We had hoped for surgery today, and even got all the way down to pre-op and met the surgeons and anaesthetists.

    Unfortunately the hospital power checks malfunctioned and fried the computer system that maintains the machinery and other essential equipment to ensure a safe surgery.

    We are hoping for Friday now, for the surgeons to remove the tumour and release the fluid that is built up on his brain, and causing all of these terrible symptoms.

    If ever there were a time to pray for Jeff it is now.

    Sorry if this is the first you are hearing of this, it has been a big week. Thanks to everyone who has been sending well wishes our way, we all really appreciate it, and have been reading all of your messages aloud to Jeff.

    Peace from Patt, Gabs and Family. Xx

      0 comments  |  Login to leave a comment
  • Update:

      23 May 2016
    Main image

    How big my brain tumour was back in mid April to how big it was yesterday. (Left mid April, right is Sunday).

    I don't like them as much as they seem to like growing in me.

    Thank you everyone who has donated, and a big thank you to everyone who is helping fundraise while I'm not able. Bootcamps, ring fight, sausage sizzles, flyer delivery, they all help. Sorry if I missed you.

    I will keep fighting as this round will be a long haul. I want to live a long and happy life.

    Peace & Prayers from Patt.

      1 comment  |  Login to leave a comment
    • 24/05/2016 by Christine

      Hey Patt, glad to hear you're keeping up the good fight. When you can face it try and eat food with Oregano, Garlic, Cayenne Pepper, and Turmeric. Great if you like Indian foods :)

      Wishing you much wellness.

      Mother of Grace and Hannah

  • Update:

      17 May 2016
    Main image

    A comparison of my hair curliness after being on dabrafenib.

    Recovery has been hard to say the least:

    • constant dizziness/hard to navigate the hallway at times

    • early morning wake ups (2am)

    • no hearing in right ear

    • tiredness/fatigue

    • lack of tastebuds

    • constant hunger

    • loss of facial muscle on the right side

    • pimples

    • nauseous at times

    But I will beat cancer, this shit won't beat me.

    Basically I have to wean off the steroids, which help with the swelling. But have to be off them so I can start with the Keytruda and/or Opdivo.

    So I will will continue my fight.

    Peace & Prayers from Patt xx

      0 comments  |  Login to leave a comment
  • Update / Video:

      12 May 2016
    Main image

    Yesterday I went to hospital as I have been nauseous. Managed to have dinner (touch wood). So hopefully it's just the steriotactic radiation working it's magic!

    In March I managed to help 'Melanoma NZ' with an educational video about melanoma cancer to help raise awareness. So enjoy :)

    Peace & Prayers from Patt x

    https://m.youtube.com/watch?v=NR70uy_RlsA

      0 comments  |  Login to leave a comment
  • Update: Steriotactic radiation done

      7 May 2016
    Main image

    My Stereotactic radiation is done.

    The awesome kind team did it last night in Dunedin and it took just over an hour.

    I still look puffy, still have my hearing & tastebud loss and am still dizzy. But they don't expect these things to drop anytime soon so it's working a slow game to shrink this tumour. But according to my attitude, it will shrink... they said expect fatigue... but bring it on!

    Still managed to see some of Dunedin today, mint beaches and the people are friendly as.

    I also got to meet Oncologist Chris Jackson. Had a good talk about my 'video plea' and he thanked me for my effort :)

    Solid handshake and eye contact on the guy, so you know he's genuine.

    Peace & Prayers from Patt x

    #rise4patt

      0 comments  |  Login to leave a comment
  • Interviews and Update

      3 May 2016
    Main image

    Tomorrow I am heading down to Dunedin to get my stereo-tactic radiation on my brain tumour, which will hopefully shrink and get rid of it completely. I'm hoping that I lose my dizziness, and regain my taste buds and hearing.

    I will be down till Friday.

    My Oncologist told me on Monday that I have more tumours.

    8 definite which are on my lungs, but there could possibly be 14 #productive

    I have also done two interviews today one with 'TVNZ' the other with 'Stuff' I am tired but this is the fight I feel I need to do.

    Links for interviews:

    http://www.stuff.co.nz/national/health/79555316/Auckland-students-creative-approach-to-campaigning-for-melanoma-drug-Keytruda

    https://www.tvnz.co.nz/one-news/new-zealand/takes-time-and-we-don-t-have-melanoma-sufferer-s-desperate-plea-pharmac

    Peace & Prayers from Patt x

      0 comments  |  Login to leave a comment
  • Update:

      1 May 2016

    This is my plea to 'Pharmac'.

    I have made 1 minute video to fight for my cause.

    New Zealand has the highest rate of Melanoma in the world, yet we don't have any funded treatment?

    I am fighting cancer, but also fighting for gold.

    Peace & Prayers from Patt/Jeff x

      0 comments  |  Login to leave a comment
  • Update:

      27 April 2016

    I've been taking it easy with the family and am waiting for my stereotactic radio surgery next week down in Dunedin.

    Hopefully it will blast the brain tumour and stop its growth, because I have lost complete hearing in my right ear, most of my tastebuds and I still have constant dizziness. (but im lucky I dont feel nauseous) touch wood.

    It's still unclear as to what other growth/s are going on, but I have been told that the Dabrafanib has stopped working.

    So I will start another treatment after my stereotactic surgery.

    Fingers crossed

    Peace & Prayers from Patt x

      0 comments  |  Login to leave a comment
  • Round 8

      20 April 2016
    Main image

    Update: basically bad news; I went to hospital on Friday the 15th with symptoms of dizziness and muffled hearing in my right ear.

    They did an MRI scan and have found another hurdle I have to overcome.

    Another brain tumour...my third one in 8 months.

    This time its behind my right ear, and lower down in the brain.

    I have been given two options;

    Radiation to the 23mm mass or surgery which has a high risk of me losing hearing in my right ear and movement in the left side of my face.

    I am waiting for my CT scan results which will show if I have any new growths in my body, as the 'Dabrafanib' that I am on could still be working (sometimes it doesn't quite get though to protect the brain like it does everywhere else).

    To pass the time in hospital, I have made a video of some of the things I did this summer.

    https://www.youtube.com/watch?v=uObHN7Uu0kw&feature=youtu.be

    I have been discharged and am just waiting for appointments, info etc.

      0 comments  |  Login to leave a comment
  • Update:

      17 March 2016
    Main image

    So basically since January I have been waiting for a MRI scan on my brain to see if there was any new growth (tumour). They were concerned because a highlighted area appeared in a CT scan and they were unsure what was causing this.

    Mid February I had my MRI scan and just last week I got results back:

    I was sitting in Christchurch airport when I got the call, a lot of jargon, but basically it's NOT a tumour, they believe it's scar tissue from my previous ops!

    What a way to end a good trip to the South Island!

    (Here's a pic of me above Akaroa)

    Thanks to everyone who has and is helping me through this, I feel good. I'm catching up with my uni assignments and having fun.

    I am going to beat cancer.

    Peace from Jeff aka Patt.

      0 comments  |  Login to leave a comment
  • Petition at Parlament

      1 March 2016
    Main image

    Today Jeffrey flew down to Wellington to be there for the presentation of over 11,000 signatures, of people who all think that melanoma treatment 'Keytruda' should be publicly funded.

    He has had a full on day of interviews, in the hope that a little media might make it hard for Pharmac to keep saying no. (One of which is below)

    Thank you to Kathryn for her generous donation of flights, so that Jeffrey and his mum could make it today, we really hope it can make a difference!

    Peace From Gabz (and Patt)

    Link for interview:

    https://goo.gl/1m5qk2

      0 comments  |  Login to leave a comment
  • Jeff Interviewed By John Campbell

      26 February 2016
    Main image

    Have a look at this, my interview with John Campbell yesterday.

    This is the drug that will give me a fighting chance, but yet they won't fund it.

    Pharmac called the drug "low priority", well why don't they try walk in my shoes... what priority will they call it then?

    Link for interview below:

    http://goo.gl/ayyHVr

      0 comments  |  Login to leave a comment
  • Update:

      7 January 2016
    Main image

    Me stoked as, camping up North! Was having a mint time with my family & friends. But unfortunately this holiday was cut short.

    On the 3rd of Jan I went to Auckland hospital as I was experiencing constant days of tiredness. After spending a night, we were advised that a 2cm lesion (possibly a reoccurring tumour) was visible in the cavity where my last two were removed from. After another few days and a MRI scan in hospital, the doctors are unsure whether this development is actually a very small tumour or leftover swelling from the radiation therapy. So time will tell.

    Sorry to bring this news in the new year, but my family & I are hoping that my BRAF medication is still doing it's job and its just residual swelling that i'm dealing with.

    Peace from Patt.

      1 comment  |  Login to leave a comment
    • 25/01/2016 by bhntvyet

      01/01/1967

  • Great News!

      14 December 2015
    Main image

    Today I got my scan results back.

    No signs of any tumours.

    No new ones.

    And my lung tumours have disappeared!!!

    The BRAF meds have gone to work.

    What a Christmas present this is!

    I will continue on these drugs, as my medical oncologist has confidence that they will work for 3-6 months, so I'm not out of the woods yet.

    But what a way to begin summer.

    For all of your donations, you have brought me time... thank you!

      2 comments  |  Login to leave a comment
    • 15/12/2015 by Christine

      That's such great news!!! Keep up the good healing and have a Happy and Merry Christmas! :)

    • 25/01/2016 by bhntvyet

      01/01/1967

  • Email the Government for Keytruda Funding

      7 December 2015
    Main image

    We need to get Keytruda funded to save Jeff and relieve him and his family of this financial burden and stress. Can you help? We would like you to email the Prime Minister John Key, the Health Minister Dr Jonathan Coleman and your local MP.

    The more people that speak up about this issue, the better the outcome for all NZ Melanoma sufferers. Thanks for your help, and please share with as many people as you can!

    Please copy and paste the below email template (or write your own) and send to the following addresses:

    John Key

    john.key@parliament.govt.nz

    Dr Jonathan Coleman

    jonathan.coleman@parliament.govt.nz

    Local MPs (click on their name to get email address)

    http://goo.gl/5MKHnY

    Subject: Melanoma Cancer Treatment

    To {name}

    As a member of parliament you are in a position to make a difference to the lives of more than 300 New Zealanders every year, as well as their families and friends.

    As a New Zealander it is hard to find someone who has not been affected by, or knows someone who has had Melanoma. I am writing to you on behalf of my friend Jeff Paterson, and all the other Melanoma sufferers in this country.

    In excess of 300 Kiwis die per year from Melanoma cancer. Along with Austrailia we have the highest rates of Melanoma globally. Yet our current funded treatments for this disease are proving to be ineffective.

    New treatments are available that can save Kiwi lives and we are not taking advantage of this. Other countries, including Australia, have made Pembrolizumab available to the public. New Zealand should do the same.

    The government has the ability to immediately provide Pembrolizumab (Keytruda) to New Zealand Melanoma sufferers by providing Pharmac with the necessary funds to secure the drug treatment.

    Please help save my friend.

    Regards,

    {name}

      1 comment  |  Login to leave a comment
    • 25/01/2016 by bhntvyet

      01/01/1967

  • Jeff Interviewed About Keytruda Drug Funding

      3 December 2015
    Main image

    With the news today that Pharmac deemed Keytruda as “low priority” for funding, New Zealand media were keen to talk to Jeff and get his opinion as a cancer sufferer in need of this life saving treatment.

    Check out the links below to see the interviews:

    3 News – Doctors, patients angered by Keytruda funding decision

    http://goo.gl/DYLesL

    Seven Sharp – Poor Kiwi melanoma sufferers dying for a chance at life-saving drug

    http://goo.gl/6r8d0b

    3News – Community fundraises for game-changing melanoma drug

    http://goo.gl/OmdEtu

    Thank you for your continuing support, Jeff and his family really appreciate your donations, kind words and messages.

      1 comment  |  Login to leave a comment
    • 25/01/2016 by bhntvyet

      01/01/1967

  • Q & A

      27 November 2015
    Main image

    What treatment does Jeff need?

    Currently Jeff has started on a BRAF inhibitor, an immunotherapy drug to shrink and stop the growth of his lung tumors. After 6 to 8 months on the BRAF treatment, Jeff will likely need to switch to Keytruda.

    What will my donation be used towards?

    Your donation will go straight to Jeff to pay for his immunotherapy drugs, currently BRAF, which costs $10,000 per month. Ideally Jeff’s medical team would like to add MEK drugs with the BRAF for extra coverage, but that is an added $10,000 to $20,000 each month, so it’s very unlikely this will happen. If Jeff needs Keytruda treatment, it will cost $12,000 - $15,000 every 3 weeks.

    Why is the treatment so expensive?

    The immunotherapy drugs that Jeff needs to fight his stage 4 cancer are not funded by the government in New Zealand. This means that Jeff and his family need to raise the money to pay for his treatment on their own.

    Is Jeff eligible for a clinical trail?

    Unfortunately no, because Jeff has had tumours on his brain, he does not meet the criteria for the clinical studies.

    What does Rise 4 Patt mean?

    Patt is short for Paterson, Jeff’s surname. A nickname given to him by his mates, it has turned into a call for action! Used across social media as #rise4patt

    What is the best way to keep up to date with Jeff’s progress?

    You can visit his facebook page at facebook.com/rise4patt

    What treatments has Jeff had already?

    2009

    Jeff’s first skin cancer was at age 16, with a mole and the surrounding tissue in his right forearm surgically removed

    March 2014

    A mole on Jeff’s back was found to be an aggressive melanoma, and a wider excision surgery was performed in April. The melanoma had spread to the lymph nodes in Jeff’s neck. Jeff had surgery to remove these nodes 3 days after his 21st birthday.

    May 2015

    Just after his 22nd birthday and celebrating his graduation with a Bachelor of Architecture, Jeff underwent surgery again to have all lymph nodes removed from under his arm after discovering a lump in his armpit. 32 nodes were removed, and 2 were positive for melanoma.

    September 2015

    Starting study on his Masters of Architecture Jeff began getting headaches and aura seizures. This was due to a golf ball sized tumour in his brain, specifically the left temporal lobe. Jeff underwent brain surgery on the 2nd September and metastatic melanoma was confirmed.

    While recovering from this surgery, they found a melanoma tumour in the muscle just below his right buttock. Jeff had surgery to remove the tumour.

    October 2015

    Jeff started having more seizures 5 weeks after his brain surgery. A scan revealed he had ANOTHER brain tumour in his left temporal lobe – the same location. Fast growing and aggressive, the tumour had grown from nothing to bigger than a golf ball in six weeks. On 16th October Jeff underwent his second brain surgery.

    Before leaving hospital Jeff was scanned and found to have 4 more tumours, located in his lungs. 3 in the left lung and 1 in the right. These are inoperable, and Jeff needs immunotherapy drugs to get rid of these tumors.

    November 2015

    12 days after Jeff’s second brain surgery, Jeff began local radiation treatments to his brain. Ten sessions, finishing on the 10th November.

    Is there any other way I can help?

    Thank you for your support! If you could share Jeff’s Givealittle page to as many people as possible that would be great. And any fundraising ideas / support is much appreciated, please email rise4patt@hotmail.com or visit facebook.com/rise4patt

    I am wanting to donate from overseas, but am having trouble with my credit card.

    Givealittle has a number of security measures in place to minimise fraud. From time to time an internationally issued credit card may not be accepted due to these measures.

    If you are unable to process a donation or pledge using an international card, connect with helpdesk@givealittle.co.nz as they can provide assistance.

      1 comment  |  Login to leave a comment
    • 25/01/2016 by bhntvyet

      01/01/1967

  • Fundraiser for Jeff

      6 November 2015
    Main image

    Come along to Western Heights Primary School on Sunday the 29th for some fun! We will have Food/Drinks Raffles, Auctions, Face Painting, Craft and more! Bring the kids and bring some cash, because all proceeds will be going to Jeff's cause!

    If you would like to donate goods to auction/raffle, contact rise4patt@hotmail.com or 0211769094

      1 comment  |  Login to leave a comment
    • 25/01/2016 by bhntvyet

      01/01/1967

  • Voilition Gym is Behind Me!

      30 October 2015

    In the words of my gym:

    WE NEED YOUR HELP..!!!!

    Jeffery Paterson is a life long member of Volition and is battling Melanoma. At only 22 years old, He has had over six major surgeries, including two on his temporal lobe (brain). Unfortunately he has been diagnosed with four in-operable tumours in his lungs, and is seeking immunotherapy treatment. This is not currently funded by Pharmac, the cost for this treatment is in excess of $300,000.00 and the team at Volition want to give him a fighting chance to survive..We are calling on the support of our members, the amazing community and greater networks to help us raise funds for Jeff's treatment.

    There is currently a "Give a Little" account set up for donations to be made https://givealittle.co.nz/cause/rise4patt/

    But we would like to take it one step further....

    The team at Volition Fitness would like to offer our support to Jeff by encouraging our members and members of the public to either make a one off donation to "Give a Little" or set up a monthly auto payment into a nominated account which we will provide on enquiry.

    Our aim is to get the monthly treatment cost covered.

    Can you spare $5 to $10 per month for the next 2 years?

    1000 people paying only $10 per month will cover it.

    Together we can all make a difference!

    For every automatic monthly payment of $10 you make you will go in the monthly draw to win a free one month membership (for you or a friend-value up to $85)) and the 6 monthly draw of a free 6 month membership (value $325) Spot prizes from The Mad Butcher, Columbus café, personal training vouchers and massage vouchers also to be won.

    To go in the draw please record your name and mobile or home number on the details section for the auto payment.

    We can do so much for such a little cost.

    Please feel free to message us with any help you can offer and we encourge you to share this post with as many people as possible.

    We thank you in advance for your support.

    Team Volition

    https://www.facebook.com/glenedenfitness/

      1 comment  |  Login to leave a comment
    • 25/01/2016 by bhntvyet

      01/01/1967

  • First Day of Radiation Therapy

      30 October 2015
    Main image

    Its 12 days after my last brain surgery and im feeling pretty good. So im hoping the local radiation to brain that I started today wont have any side effects. 1 down, 9 sessions to go.

    At least I got to crank the beats while doing so.

    Macklemore & Ryan Lewis - 'The Heist'

    Thank you everyone for all your support so far, keep it up because its definitely helping.

    Peace from Patt.

      1 comment  |  Login to leave a comment
    • 25/01/2016 by bhntvyet

      01/01/1967

  • The Full Story:

      30 October 2015
    Main image

    Well, it all started when I was 16 years old. I noticed that a mole on my right forearm was peeling. Due to my strong family history of having Melanoma, I decided to get it checked out. Consequently, I had surgery to remove it then when the results came back, it was positive for Melanoma so had to go back in and have a wider excision done taking more of a margin to ensure that all the Melanoma was removed so that it would not spread throughout my body. This all happened just before my high school exams. This operation was successful.

    I continued to have regular check up’s with a Melanoma specialist and whenever suspicious looking moles were discovered or moles had changed, these were taken out.

    It wasn’t until March 2014 when a mole had changed on my back where my tattoo is that things started to get more serious. This mole was taken out and this came back as a very aggressive melanoma. A wider excision was then done in April 2014. This surgery destroyed one of the letters of my tattoo. (Paterson became Pate son) Haha.

    The surgeons then wanted to check to make sure that the melanoma had not spread into my lymph nodes, so a biopsy of my neck nodes called a sentinel biopsy was done. Unfortunately this was also positive for melanoma so I then had to undergo surgery again,3 days after my 21st to have all of the nodes in my neck removed.

    A year later, just after my 22nd birthday, and a day after celebrating my graduation of attaining my Bachelor in Architecture, I underwent surgery again to have all of the lymph nodes removed from under my arm as I had noticed a lump in my armpit the size of a Jaffa. (Great timing!) 32 nodes were removed, and 2 of these were positive for melanoma.

    I was now studying to get my Masters in Architecture and was slowly recovering from the nodal surgery. I was also slowly getting back to the gym, something that I was passionate about before I got sick. I was trying to catch up during the semester holidays on all the assignments that I had missed out on. I was one assignment short of catching up to my class mates when I started getting headaches and having episodes of emotional extremes, very happy one minute, then down the next. I could also hear voices in my head and had feelings of ‘déjà vu’. I could not work out where the voices were coming from but put it down to the stress of trying to catch up with my Uni work. (These episodes I now know were aura seizures) These episodes continued for 3 weeks when they started to get more sinister. I started to lose my peripheral vision, my hearing was distorted and I had trouble making sentences. After 2 of these episodes it was time to head to hospital as it was starting to freak me out!

    After undergoing scans the same day, I was told that I had a golf ball size mass in my left temporal lobe which was more than likely to be secondary melanoma.

    After quite a few delays, I finally underwent brain surgery and had this tumour removed on 2nd September 2015 and metastatic melanoma was confirmed.

    I came through the surgery fine and was recovering well.

    While recovering from this surgery, they also found a melanoma tumour in the muscle just below my buttock which I also had to undergo surgery for. (Talk about a pain in the ass!)

    I was off the steroids but was taking anti-seizure medication and I was coming along nicely with no sign of any seizures. That was until 5 weeks later when I started having headaches and a drooping eye. I was about to start radiation on my brain and had already had a mask made which bolts me to the bed while they blast radiation rays to my brain.

    Once again I headed to my GP and to hospital but was told it was probably just the healing process, had a simple scan and took their word for it that things were fine. That was until I started having those ‘aura seizures’ again so once again I went back to hospital. I had to then push for a ‘contrast CT scan’ which shows up tumours.

    The result of this was that I had ANOTHER tumour in my brain in the left temporal lobe, basically in the same spot as last time although this one was bigger. It had grown from nothing to bigger than a golf ball in 6 weeks!

    I underwent brain surgery again, on 16th October 2015, this time I only had 22 staples instead of the 33 I got last time. I still have titanium plates holding my skull together which will remain there.

    So, second brain surgery was over and before being discharged from hospital to go home they did another contrast CT scan and an MRI. The news was not good. They broke the news to me that they had found 4 more tumours, this time in my lungs. 3 in the left lung and 1 in the right lung, ranging in size from 1mm to 5mm. Not what we all wanted to hear is putting it mildly!

    After having my radiation mask realigned, I am now lined up to have radiation in the next few weeks on my brain for post surgery treatment.

    I also have an appointment with a medical oncologist shortly, to discuss treatment options for my lung tumours and to deal with anything else that may be lingering in my body. This will more than likely be drug treatment of some kind. There are a couple of drugs available in NZ but are very expensive. There is also a new drug which has come out of Australia and is being called the miracle drug as it shrinks melanoma tumours. This drug is not yet funded in NZ and the cost for this is astronomical.

    I am determined to fight this horrible disease so would love the chance to be able to afford drug therapy.

    Jeffrey Paterson (aka.Patt)

      1 comment  |  Login to leave a comment
    • 25/01/2016 by bhntvyet

      01/01/1967