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Stand with Cheyne; Dealing with Motor Neurone at aged 36. One Step at a Time

  • Special note from Cheyne

      11 December 2025

    To friends present and past. This disease has attacked my body really quickly and every day you learn that yesterday was better than today it is a constant reminder that what you can do today will be impossible to do tomorrow. The worst part about it is that it doesn't just affect me but those close to me as well, you have no idea how it feels when people who are close to me look at me and I can see the hurt and pain in their eyes it is a surreal feeling and then reality slaps you in the face. This disease has taught me that every day counts and if you can do something today do it, cause tomorrow is not promised to us tomorrow is a gift. If you love your fellow brothers and sisters tell them you love them, there is nothing wrong with showing affection we are all beings and come from a place of love.

    My health is not the best and my stubbornness attitude towards this disease i have already outlived the Drs assumptions, in saying that the reason for this message is to have the ability to say farewell to all you Good buggers. I love you I should of said it more.

    This has been a deeply difficult decision, and on the 14th of December I will be saying goodbye. While I will miss my loved ones dearly, especially my little girl, I take comfort in knowing that I can give others a second chance at life. I am truly grateful for the life I’ve had and for all the people I’ve been fortunate enough to cross paths with. To all of you GC*s I love you all and wish you well for the future.

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  • Update on Cheyne's Progress

      15 September 2025

    Cheyne’s condition has progressed to the point where he now requires 24/7 care. His loved ones are no longer able to care for him at home, and after completing a 7-day stay in hospice, he has been referred back to the hospital. We are now aiming to raise new funds to help move Cheyne out of the hospital and into a more comfortable environment where he can receive the full-time care he needs.

    We are looking into re-opening his Givealittle page or starting a new one. Will keep you all updated.

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  • Exciting News! 🎉

      7 January 2025
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    We are overjoyed to announce that Cheyne and Mazia are getting married! 💍❤️ Your love and support has meant the world to us, and we wanted to share this beautiful moment with you all.

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  • Exciting Annoucment.

      23 December 2024

    We are incredibly grateful for everyone's generous donations, especially during this Christmas season. Your support means so much to Cheyne and his family.

    We are delighted to announce the early arrival of their precious little girl, Summer. Despite a sudden and traumatic entry into the world, she is now doing much better. Summer is no longer in the ICU, is eating well, and is steadily gaining weight.

    Cheyne remains positive, but life is certainly throwing him some curveballs. He is beginning to struggle with his strength and stamina, making some of life's basic tasks challenging. Cheyne's father is making the long journey to New Zealand to spend some precious time with him and his new granddaughter, Summer.

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