Standing for Armani' : A Little Boy Fighting a Rare, Life Threatening Genetic Condition

Help Support Armani’s Medical Care

Armani is a 5-year-old, non-verbal autistic child with multiple rare and life-threatening medical underlying conditions.

Armani was repeatedly taken to hospital and discharged from Emergency Departments multiple times without a unifying proper diagnosis.His symptoms were attributed primarily to autism and a case of diagnosis overshadowing. His condition deteriorated rapidly and significantly.

We immediately decided to get him to Starship where it took 10 doctors and 2 weeks, to finally figure out that he was suffering a Secondary Hypokalemic Periodic Paralysis attack.

This is a super rare genetic disorder causing episodic paralysis, critically low potassium levels, and dangerous cardiac complications. He has severe bradycardia, reported long QT during attack and a congenital coronary artery fistula, placing him at ongoing risk of serious cardiac arrest events.

Armani can't communicate with words explain pain or early warning symptoms and requires close medical monitoring from his parents for triggers for hypo pp every day.

Armani’s medical care involves specialist cardiologist, neurologist,genetics, metabolic management, frequent investigations, ongoing monitoring, and travel for specialist care.We are embarking to Acibadem Hospital in Turkey for a diagnosis,treatment and emergency plan.

Give a little page has been created to help cover medical-related expenses and ensure Armani can access appropriate specialist care.

Thank you for your support ❤️