Content warning: Hospital photo below — shows medical lines and equipment.
18 October 2025
This is our little fighter, Myles, right after his Norwood open-heart surgery at Starship last Sunday — on his due date. The surgery was delayed a day due to an emergency admission and because our boy was stable enough to wait. His chest is still open here for swelling, which is a normal part of recovery at this stage.
It’s confronting to see, but this is the reality of what babies with complex heart conditions like Hypoplastic Right Heart Syndrome go through. Despite everything, he’s fighting so hard — crying again, holding oxygen levels in the 80s, and amazing his care team every day. 💙
At just five days post-surgery, he’s had all his stomach drains removed, come off cardiac support, and has even been placed on the waitlist to step down from PICU once a bed becomes available. It’s hard to believe, looking at this photo, how much recovery he’s made within one week. Today he even wore his first outfit now that most of his lines are gone. 🤩
We’re sharing this to show the strength of these little hearts and the incredible work of the team caring for him. Thank you to everyone who’s been sending love, prayers, and support — it truly keeps us going through the longest days and nights.
