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Support baby Myles’ complex heart condition 💙

  • Overwhelmed by your kindness ❤️💙

      5 March 2026
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    A heartfelt thank you to our friends, colleagues, acquaintances, family, and the many kind strangers who don’t even know us personally but still felt moved to donate, share, or pray.

    Being in a position where we have to ask for help feels very uncomfortable for us, but we are grateful for the support that helps ease the pressure with my maternity pay ending this month and the news that we will be here longer than the maximum six months the team warned us about when we decided not to terminate the pregnancy at 25 weeks.

    We are overwhelmed by the kindness shown to us. It has given us the moral support to continue advocating for him, still enjoy our new baby, and hold onto hope for a successful pathway.

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  • Content warning: Hospital photo below — shows medical lines and equipment.

      18 October 2025
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    This is our little fighter, Myles, right after his Norwood open-heart surgery at Starship last Sunday — on his due date. The surgery was delayed a day due to an emergency admission and because our boy was stable enough to wait. His chest is still open here for swelling, which is a normal part of recovery at this stage.

    It’s confronting to see, but this is the reality of what babies with complex heart conditions like Hypoplastic Right Heart Syndrome go through. Despite everything, he’s fighting so hard — crying again, holding oxygen levels in the 80s, and amazing his care team every day. 💙

    At just five days post-surgery, he’s had all his stomach drains removed, come off cardiac support, and has even been placed on the waitlist to step down from PICU once a bed becomes available. It’s hard to believe, looking at this photo, how much recovery he’s made within one week. Today he even wore his first outfit now that most of his lines are gone. 🤩

    We’re sharing this to show the strength of these little hearts and the incredible work of the team caring for him. Thank you to everyone who’s been sending love, prayers, and support — it truly keeps us going through the longest days and nights.

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  • Born and stable

      10 October 2025
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    Thank you to everyone who has donated or shared — every little bit truly helps 💙

    Good news! Our son was born with a strong 9/10 APGAR score and has been stable without needing oxygen. He’s also been confirmed as a candidate for the Norwood surgery — a huuuuge relief, especially after the medical team was leaning toward palliative care following his 37-week echo.

    His surgery is scheduled for tomorrow morning at 7 a.m. and is expected to run through most of the day, finishing around 4–5 p.m. Today, he had a Christ dedication in preparation for his surgery. We’re praying and hoping everything goes smoothly 🙏💙

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