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Support for Chastiny and her fight against brain cancer

  • Chastiny is funded - Thankgoodness

      17 January 2024

    Because of Chastiny being with Pediatrics, we are able to get funding for her for her medication! This may changer in the future, but for now she is ok to receive her medication at no cost to us. The money we have received has help pay for Chastiny to have a room make over with also a purchase of a good bed for her. We have also used some of the money to help fund holidays for her, so that we can enjoy family time. We still cant go crazy with spending as we are never sure what we may need to purchase for her. Chas still has 3 monthly stays in hospital. Since Chas will be 18 soon, we may lose the privilege's of getting stays in hospital for free and will need to book motels. This is what funding will be going towards for the future.

    Thankyou so much to everyone that has donated. We have appreciated every single dollar and make every single purchase worth it.

    Much Love x

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  • Meeting Ashanti

      11 January 2024
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    One of Chas dreams was to meet the beautiful Ashanti! Her dream came true!

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  • Been 1 whole year!

      11 January 2024
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    It's been 1 whole year since diagnosis. Chastiny has worked so hard. Fortunately her tumor has shrunken now that she is able to take tremitinib and debrafinib. We are so grateful that she is in pediatrics otherwise we don't think we would've qualified for the target treatment.

    She has done her make a wish, and had some wonderful people grant her some wonderful wishes like meeting Ashanti! Chas is doing amazing for what she is going through. We all couldn't be more proud of her.

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  • New meds

      28 April 2023
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    Chastiny has started a new medication through starship, no longer with Kathline Kilgour center. She is day 2 in and she is taking a hit. She has inflamation around the tumor that is causing her headaches, doctors has advised us that that is just the effects of radiation coming into play. She is really tired and the whole right side of her body is numb to the touch. She unfortunately has to endure to make sure the new treatment is having a good shot at working. The new medication is known to target the mutation that has been found in her tumor, in hopes that it will stop the growth of these cells.

    She is doing so amazing,im so proud of all the changes she has overcome to her young life.

    We will keep fighting! Never givng up!

    Thankyou all xxx

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  • Thats a wrap!

      16 February 2023
    Posted by: Janie Te Whata
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    That's a wrap!

    30 treatments, 6 weeks, sleepy days, hair loss, early mornings, late nights, good days, bad days, change of masks, tears, tears, tears.. we are finally done with radiation therapy and Chemotherapy. The team Kathleen Kilgour Centre is seriously amazing! We appreciate them enduring with us. I'm so, so proud of you my girl Chastiny Malone

    Next step off to Auckland to start targeted treatment on a rare gene they have found in the tumor that is growing the cells. Which is such great news.

    ❤

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  • Off chemo

      14 February 2023
    Posted by: Janie Te Whata

    We are in our final week of treatment. That is really great, and Chas has seriously soared through it, we are all so proud of her. She is off Chemo now, due to some liver inflammation, but thats also a normal procedure. She is really tired, again normal, but ready to get back to some sort of normality. We are looking forward to take a family holiday in the near future. Chas is back at school studying one subject - biology!

    Thanks for all the loves and prayers you all send our way!

    We love you all !! ;)

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    • 14/02/2023 by Jude Barback

      That is so good to hear! Thanks for the update. X

  • Last week!

      12 February 2023
    Posted by: Janie Te Whata
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    Thanks so much for all your support. We are in our last week of treatment. So much has changed. Chas is now back at school studying one subject - biology, and loving it. We are all so proud of her. Family pic of a night walk she insisted we do and it was beautiful x

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    • 13/02/2023 by nikki broughton

      Way 2 go Chas snd whanau

  • 5th week in 10 treatments to go!

      1 February 2023
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    23 treatments down. We are also down in steroid, but unfortunately means we are starting to see symptoms of this terrible disease. Tiredness is the biggest, along with hair loss. Although Chas has tonnes of hair, it still the worst part for her or any teenager going through somethinglike this. She is still striving and getting job done. We have interviews for Chas to still attend school coming up. We are planning a family holiday down south.

    Thankyou for all the love and support.

    Chas and family xx

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  • Half way!

      22 January 2023

    Chas is half way through treatment! It has been such a hard journey to navigate for her and her family. She has radiation everyday and chemo at night. Somedays she is more sick and tired than others, somedays she is good and wanting to climb mountains. So far she is doing amazing.

    Thankyou for all the loves xx

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    • 23/01/2023 by Nikki Antonsen

      You are the bravest girl I know. Sending love xx