Yesterday was so HARD! - update written by Vikki
19 October 2026
I haven't posted much about Link's journey with cancer as most updates have been shared, by a family member, on this Givealittle page. However, yesterday evening was hard.
For the most part lately, he's been playing like a baby again. Some feeding positions are still sore for him, but he can happily play on his playmat again. It brings a sense of normality, and apart from the feeding tube and other medical bits hidden under his clothes, he doesn't look like a sick baby.
Yesterday, after his top-up feed*, he vomited twice. Then, even after anti-nausea medication, he vomited twice more. Thankfully since then, he's kept breastmilk down but we have been too scared to give formula top-ups overnight.
After that, I heard Sam say from the other room "Oh f*?k." Naturally, I panicked and asked what was wrong. After initially not wanting to tell me, he eventually said that while he was touching Link's hair, a chunk of it had fallen out.
We both felt really emotional. Sometimes you almost forget that his little body is going through all of this.
We try to remind ourselves that it's a side effect, not a symptom. Even so, it doesn't make it any easier.
We find ourselves wondering how long he'll keep his beautiful ginger hair.
Sometimes, it's the little things that hit the hardest. Yesterday, was one of those days.
*Due to weight loss, Link's dietician suggested top-ups in addition to Vikki continuing to breastfeed. It may take some time to find a suitable milk option for Link's tummy.
