Such a smiler
8 June 2026
Little Luke continues to amaze us all with just how strong and resilient he is 💜 and those smiles melt my heart every time
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Support Little Luke’s Big Fight
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Home 💜
11 April 2026Sorry for the late update it’s been a bit of a whirlwind week but little Luke is smashing goals and gaining weight 💜 settling into his life at home but not without a cheeky trip back to the hospital to have his ng tube replaced after pulling it out
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Visit time 💜
29 March 2026One very happy aunty, uncle and cousin getting to visit the family and see Luke 💜 he really is an incredible little warrior. Recovering amazingly and dazzling everyone with his beautiful blues
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Today was a good day 💜
24 March 2026Happy 5 weeks little man.. and another milestone.. Cpap bubbles gone( no more scuba gear) pacing wires gone and more stuff getting removed. Chats with grandma and aunty Pam Putting on weight and giving us lots of smiles .. a good day 🥳
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Celebrating World Down Syndrome day
21 March 2026Sweet Luke is celebrating the day with little victories, every day he’s getting a little bit stronger 💜 he’s still intubated and being kept sedated but he is breathing on his own and it will hopefully come out tomorrow
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Surgery success 💜💜
19 March 2026After a very long day and anxious waiting, sweet little Luke is back from his surgery and the surgeons are happy with him 💜
He will have lots of monitoring and is being very closely supervised. They will be keeping him sedated for the next little bit
Luke is one brave little boy, our love and thoughts are with him as he starts on the road to recovery
You got this Luke 🥰🥰🥰we love you
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Surgery scheduled
18 March 2026Firstly thank you all so much for your overwhelming kindness and support. They have met with the cardiologist today and it has been decided that Little Luke needs to have his surgery tomorrow, it is a lot to process and go over 💜💜 as always our love and thoughts are with you Little Luke and family xxxxx
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A mixed day
16 March 2026Little Luke has had a bit of a mixed day today and will have a cardiologist review on Wednesday. The team looking after him have been amazing and he’s showing off his first outfit in a week after a bath 💜
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