6 infusions and relay for life, complete!
8 April 2026A quick update to share where we are after a grueling six of our expected eight infusions.
Life has been a bit of a rollercoaster lately. After dealing with some breathing issues, we’ve had two CT scans to check for progress. The results came in, we have stable disease in the two prominent tumors, and we’ve even seen a slight reduction in the size of some lymph nodes. While the fight is far from over, "stable" is a win we are holding onto as a family.
Currently, we are focused on managing the day-to-day, using medication to keep the nausea and neuropathy pain under control. We are seeing our oncology team every four weeks to stay on top of things, and the kids and I are taking it one day at a time.
We will be back in the ring with chemo soon. Until then, the children and I are prioritizing creating memories, reminiscing on the good times, and navigating this unpredictable "new normal."
Advocating for rare cancer in this country is an uphill battle, and we couldn't do it without you. Please continue to share our story if you can, every time our journey is shared, it helps raise awareness for rare cancers and keeps our village strong.
Thank you to everyone who continues to support us through Givealittle and your messages. Your kindness keeps us going.
With love and gratitude, Kida + kids xx