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We are home 🎉🎉 after 9 weeks in Auckland

  • 💜 transfer to Wilson centre and removal of her trackiostomy 💜

      12 May 2022

    Kiaora everyone with the amazing progress being made by Mya we are getting a transfer to an intensive rehabilitation center by the end of this month 🥳 I'm so proud to say Mya is just smashing out recovery with leaps and bounds 🤗

    And now discussion around removal of her tracki is being spoken about which will mean Mya can talk on her own and maybe be able to eat se Kai. But for now talk around changing her NGT tube to a Micky button which will be so good for her to get the last tube off her face. Thank you all for your continued support 🤗

    Love from me and my family

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  • Just wanted to change goal

      1 May 2022

    I think not hvng a goal is kinda better because I'm unsure how long this is going to go on for.

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  • Transferred back to Tauranga Hospital

      1 May 2022

    Kiaora everyone

    Well it's been a bit and I'm happy to say Mya is now 3 weeks and 1 day off the ventilation system and progressing like a champ 💯 we were transferred back to Tauranga hospital on Tuesday 26th of April 2022. Mya has settled in well with a tracki change too. And now has a new one that has a inner tube inside to prevent a blockage that may happen.

    Mya is also making more and more movements and the biggest thing is she is able to mouth sentence and can communicate also with head nods. She's good with her right arm getting stronger each day 🙌 doctors are still unsure about what her true condition may look like but will continue to so all they can to get her back to her normal self as much as possible.

    I can't believe you made it this far my darling 🌟 your a huge miracle that I thank God for giving you back to me and not taking you from me before I was ready 😔

    Thank you to everyone again who has sent there love and support and donations 🤗

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  • Easter update 💜

      17 April 2022
    Main image

    Kiaora everyone 💜 thank you all for the continued support while Mya is recovering in hospital. She is making small improvements each day and getting stronger everyday she is now up in her chair and loving the different view instead of just the wall or curtain. She has adjusted to being in her seat so well 🙌 after this weekend we will might be able to go home to Tauranga 🎉🥰 something that will be amazing to be closer to home. Nothing better than havng more whanau support around us to be able to see the progress Mya is making. Moving both her feet now as well and finger movement 🙌 the biggest miracle IV ever had to live through.

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  • 🎉 We are up in the ward 🎉

      6 April 2022

    Well things have taken a change for the better and Mya has now been breathing on her own for 5 days!! 🥳🤯

    We are just so pleased with how far she has come with all of the emotions we have been thru as a family to now see her awake but still a fair way to go 💪😎

    One major thing I would love to share with you all is she has just blown doctors away with her success so far as well as being able to understand soothing funny 🙌 she can smile and giggle but a silent laugh.

    Now we are creating a plan with the doctors so we can all continue to support my daughter.

    Thanks to everyone who has continued to support us while being here

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  • Update for Mya 💜

      4 April 2022

    Mya has made the weekend off the ventilation system 🙌 we are all just amazed with her strength at this time. She is showing more and more of different things over the weekend. The biggest thing I'm happy about is my baby laughed and smiled 🙌🙏 it's truley indescribable the way I feel about it all 😁 and that she's is still pulling thru

    I love you Mya 💜 always and forever my darling

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  • Goal update 💜

      3 April 2022

    Kiaora everyone firstly thank you to all who have sent through there love and support and donations 😔 I have now changed the goal and will be now adding more costs around our next stage of myas medical care and being here to support her.

    Thank you again to everyone as I know this will be handy when it comes time into it being needed.

    Thank you thank you 😔💜

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  • Update for Mya 💜

      1 April 2022

    😭😭😭 ahhh ! I'm so sorry 😔😔 it's with a broken heart that I have to update that my girl will not survive her injury 😭😭😭 ahhh! I don't know what I can say right now.... We will get to a stage where we will have to take her off the ventilation system 😭😔😭😔 and she will pass away from this 😭😭😭😭

    Aaahhhhh I'm so sorry my darling 💜 😭😭😭😭😭 I can't be more sorry 😭😭😭😭😭

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  • Update for Mya 19/03/2022

      20 March 2022

    It's so hard that I see my baby the way she is. She has major brain damage to where she's showing signs that her brain may not recover .😭😭😭

    One thing the doctors do know... Is it's the medication (taken by her) that has caused the damage to her brain. 😭 I thought that at least it not being from a lack of oxygen she was going to be ok to a certain extent but we ain't even there yet... 😭 Some of the movements she makes shows signs of a certain injury and the doctors said that's something she may forever have. But they have found a balance in medication for her to comfortable enough to wake her properly.💜 She will have another MRI this week to see how her brain injury has changed since the last one. They will put a dye inside her for the machine to pick up if there are any connections in her brain happening.

    She can breathe on her own for small periods of time and then she stops which is also part of the injury to her brain 😭

    Ahhh 😭😭😭

    A panel of neurologist will check over her scans again and come up with a plan to what suit what ever the scan provides 😭

    It's not a nice one but it's what's happening for her this week.

    😭

    Keep resting my darling 💜 mummy loves you so much 😭💜💜

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  • Today's update 18/03/2022

      18 March 2022

    Kiaora everyone thank you so much to all for making a donation to our cause

    Today Mya went back into theatre as her tubing from her operation for her dialisis line had moved and stopped working. So they took her in to see what happened and a stich had come undone letting the tube move out of place and not being able to drain. But they fixed it up and now it's working properly again.

    She is now getting the continued care to support her kidneys and breathing supports through her tracki

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  • Trackiostomy

      15 March 2022

    Today 15/03/22 Mya has had another surgery to have the tracki placed. She will continue to stay sedated for a few more days to allow the surgery area to heal.

    Then the doctors can start to wake her up to have her neurology assessment

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  • Change of line

      15 March 2022

    Yesterday 14/03/22 Mya had a new line for "dialisis type support" surgically put into her tummy to carry on support for her kidneys

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