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Amy's fight to keep smyelin

Closed Cause page created in the Health category by Amy Clague


$27,269 of $100,000 goal

Given by 324 generous donors in over a year

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Fundraising to help me get to Chicago to undergo a stem cell transplant to halt the disease progression of my Multiple Sclerosis.

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Awareness

I woke up on my 20th birthday in 2013 numb down the right hand side of my body. One month, 2 MRI's and 7 lumbar punctures later - I was diagnosed with MS. My life changed!

I have gone from having little to no understanding of MS to having my life and health ruled by it. In only 13 months I have had 5 relapses and now suffer from weakness, sensory loss, tingling/electric sensations, pain, severe fatigue, depression, and anxiety. Reduced hand eye coordination and memory loss have at least given me an excuse for being clumsy and forgetful but what I really want, what I crave, is a future, something I took for granted for twenty years.

I have recently been put forward for funding of beta interferon which involves injecting myself with an immunosuppressant daily. This treatment works to reduce relapses but has not fully kept my relapses or my symptoms at bay. It only delays the inevitable decline.

A revolutionary stem cell transplant has been developed to reset your immune system and halt disease progression. I've spoken to several people who have undergone the transplant who are doing incredibly well and are living lives they only dreamt of when MS ruled their world. Many others who have received this treatment are still well over 5 years later. This is available in several places but the cheapest option is Moscow, Russia.

Donations will be used for flights to and from Moscow and for the cost of the treatment and stem cell transplant. This 5 week treatment involves strong doses of chemotherapy that will compromise and potentially permanently destroy my fertility. If sufficient donations are received some will be used to receive fertility treatment before chemo to increase the possibility of one day having a family of my own.

I appreciate you taking the time to read this. It is my goal, as well as fundraising, to spread awareness of MS and this revolutionary treatment.

Thank you


Latest donations

  • Charlotte

    Charlotte on 12 Mar 2016

    $40

    Thinking of you Amy, fingers crossed the next phase goes as smoothly as possible X

    $40

  • Guest Donor

    Guest Donor on 26 Feb 2016

    Private

    Private

  • Guest Donor

    Guest Donor on 25 Feb 2016

    $20

    Wonderful news Amy, very best of luck in your treatment.

    $20

  • Trudie Venter

    Trudie Venter on 24 Feb 2016

    Private

    Private

  • Kelly Lewis

    Kelly Lewis on 24 Feb 2016

    $10

    Saw your story on 7 Sharp last night - Praying for you Amy. :)

    $10

Page created by

Amy Clague

Individual
Wellington

My name is Amy Clague. I live in Wellington, New Zealand and I work full time as a nanny.

Funds will be paid to a verified bank account of Nicola Saywell.

Got a question?

3 questions have been asked already. Check them out and ask yours here.
“Good luck.”
“In memory of my mother Meryl Brew, who lived with MS for more than 40 years but refused to let it define her. She was always optimistic that an effective treatment would be found. Very best wishes Amy.”
“Good luck and best wishes for your journey through life.”
“Great attitude, good luck with everything :)”
“Hey hope you make your total. You show an amazing attitude - much respect”
“Wishing you all the very best Amy :-)”
“Wishing you all the very best x”
“Hope you get there!!! :)”
“Best of luck Amy! My Dad has MS and I'd love to see an awesome young woman like yourself beat it. I'm sure you'll rock it in Russia!”
“I had a cousin with MS and my very best childhood friend has it. Hope you raise this money to help you go to Russia. xx”
$27,269 of $100,000 goal

Given by 324 generous donors in over a year

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Closed on 1 Apr 2016

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