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Supporting Elyse

Cause page created in the Kiwi Kids category by Supporting Elyse for "Elyse Johnson"

$24,834 donated

Given by 217 generous donors in over a year

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Elyse desperately needs ongoing donations to help pay for her Non-Government funded medicine - funds are running out fast.

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Thank you for your support to Elyses previous Givealittle page which received $62,399.50 between 9 Apr 16 and 14 Dec 17

Elyse still needs ongoing donations to help pay for her ridiculously expensive non-government funded medicine which is costing thousands of dollars every month!

Elyse was diagnosed with DIPG (diffuse intrinsic pontine glioma) on the 8th April 2016. An aggressive brain tumor with an expected survival time of 2-9 months from diagnosis. We are almost at 3 years past DX! During this time we have spent countless days researching effective alternative medicines that are effective in killing tumors and helping her body fight for itself. Since Elyse’s last paediatric appointment which went so well, she is continuing to show signs of improvement. Elyse has received so much support from the community but the donations received are running out. Fast! Please help by making a heart felt donation and sharing the Supporting Elyse facebook page & Givealittle page. We must keep working to spread the word and raise awareness of the Supporting Elyse Cause and DIPG.

Elyse is currently taking a number of natural medicines which are helping her fight this awful tumor. Unfortunately, like in many other cases, medicines that actually help aren't government funded. Below is what Elyse is currently taking.

Tilray CBD THC Oil: This is an oral medicine costing $3.5 thousand dollars every month.

TBL-12: TBL-12 is a natural product made out of marine ingredients, with the main ingredient being bêche-de-mer (sea cucumber). It works by modulating the immune system, which in turn helps fight cancer and other diseases.

One box of 52 tubs (one months supply) costs NZD$1,124.17.

Liquid Hope: This is a liquid food full of organic vegetables and herbs to promote health and vitality and support Elyse's body’s natural immune system.

This costs $500.00 every 2 weeks.

Frankincense Extract—Boswellia

Research shows a link between AKBA and protection against brain, breast, colon, pancreatic, prostate and stomach cancers. The cancer-killing properties of boswellia extracts and frankincense oil are in part due to how they influence our genes to promote healing, plus how they curb serious side effects of cancer treatments.


Turmeric has constituents that have been found to exert antioxidant, anti-inflammatory and anti-mutagenic activity, which means it helps combat many of the same illnesses that boswellia does. A number of laboratory studies on cancer cells have shown that curcumin does have anticancer effects. It seems to be able to kill cancer cells and prevent more from growing.


Dandelion is a very rich source of beta-carotene which we convert into vitamin A. This flowering plant is also rich in vitamin C, fiber, potassium, iron, calcium, magnesium, zinc, and phosphorus. It's a good place to get B complex vitamins, trace minerals, organic sodium, and even some vitamin D too. Dandelion also contains protein, more than spinach. Dandelion may slow cancer's growth and prevent it from spreading. The leaves are especially rich in the antioxidants and phytonutrients that combat cancer.

Coconut Oil

Lauric acid is an active anti-cancer component in coconut oil that constitutes 50 percent of its makeup. Lauric acid is also beneficial in deterring parasites, bacteria, fungi, yeasts, and viruses.


Probiotics are used to help cancer patients. Probiotics stimulate the immune system and eliminate carcinogens and directly kill tumor cells. These good bacteria also secrete B vitamins and vitamin K, which may slow tumor growth.

Vitamin C

Studies have shown that high doses of vitamin C may slow the growth and spread of prostate, pancreatic, liver, colon, and other types of cancer cells.

(After the givealittle fees) all of your donation goes towards Elyse's parents to assist with purchasing non-funded medicine, medical care, travel and general costs around making the most of their precious time together.

Thank you for your support to Elyse's other Givealittle page which received $62,399.50! We have opened this new page as she still needs help to pay for her ridiculously expensive non-government funded medicine!

Supporting Elyse's involvement (page creator)

Thank you for visiting the Supporting Elyse Givealittle page. Elyse needs ongoing funds to pay the rediculously expensive medicine she needs to keep her tumor stabalized.

​No parent of a child suffering any life threatening disease should have to pay tens of thousands of dollars just to keep their child alive. My goal here is to raise enough money to cover the costs of Elyse's medicine until a cure is found. I will keep on fighting until I have achieved this goal. - Vicky

Use of funds

Funds will be used to purchase Elyses non-government funded medicine

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Latest update

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3 years since diagnosis  26 March 2019

The 8th April 2019 marks three years since Elyse was diagnosed with DIPG. She will also be at Starship Children’s Hospital for an MRI to monitor the size of her tumor.

The little Warrior Princess is continuing to show signs of improvement and her symptoms subsiding in her day to day activities. No radiotherapy and all natural alternative medicines. No Big Pharma 'medicine'.

Elyse still has a long road & fight ahead of her but this is such a massively promising path that she is heading down. This is not a journey she is on by herself, she is leading the way for other family's fighting the DIPG monster too.

Tilray CBD THC Oil: (Medicinal Cannabis Oil) Elyses medicine, is not government funded and is costing the family $3.5 thousand dollars every month.

To date, approximately $120,000 has been raised and spent on her alternative medicines. No parent of a child suffering any life threatening disease should have to pay hundreds of thousands of dollars just to keep their child alive. 

Please help by making a heartfelt donation and share her story. Thank you everyone for your ongoing support, making Elyses journey possible. <3 #SupportingElyse #FightDIPG #BeTheHope

Read 8 more updates

Latest donations

  • Sharron

    Sharron on 06 Sep 2019



  • Ellen

    Ellen on 16 Aug 2019


    So happy to see you getting better sweet Elyse


  • Guest Donor

    Guest Donor on 20 Jul 2019



  • Guest Donor

    Guest Donor on 08 Jul 2019



  • Gordon

    Gordon on 05 Jul 2019


    365 people giving $75 will support Elyse for a year --that totals $27375 . Lets rise to the challenge Taupo ! Lets do this yearly if required .


Who's involved?

Casey Johnson's avatar
Paying to a verified bank account of Casey Johnson on behalf of Elyse Johnson

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This page was created on 6 Dec 2017 and closes on 6 Dec 2019.
$24,834 donated

Given by 217 generous donors in over a year

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