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Supporting Elyse vs DIPG

$28,823 donated
Given by 271 generous donors in 4 years

Elyse desperately needs ongoing donations to help pay for her Non-Government funded medicine - funds are running out fast.

Waikato

Thank you for your support to Elyses previous Givealittle page which received $62,399.50 between 9 Apr 16 and 14 Dec 17 This page was created because we still need your help!

Elyse still needs ongoing donations to help pay for her ridiculously expensive non-government funded medicine which is costing thousands of dollars every month!

Elyse was diagnosed with DIPG (diffuse intrinsic pontine glioma) on the 8th April 2016. Elyse was just 2 years old. She was not expected to live for more than 2-9 months from diagnosis. Elyse is heading towards being 5 years past DX! During this time we have spent countless days researching effective alternative medicines that are effective in killing tumors and helping her body fight for itself. Since Elyse’s last paediatric appointment which went so well, she is continuing to show signs of improvement. Elyse has received so much support from the community but the donations received are running out. Fast! Please help by making a heart felt donation and sharing the Supporting Elyse facebook page & Givealittle page. We must keep working to spread the word and raise awareness of the Supporting Elyse Cause and DIPG.

Elyse is currently taking a number of natural medicines which are helping her fight this awful tumor. Unfortunately, like in many other cases, medicines that actually help aren't government funded. Below is what Elyse is currently taking;

Medicinal Cannabis Oil Tilray 10:10 CBD:THC – Prescription Only

This is an oral medicine costing $3.5k every month.

Lypo Tumeric—Curcumin – Available from pharmacy

Mixed with Olive Oil and Black Pepper Essential Oil

Turmeric has constituents that have been found to exert antioxidant, anti-inflammatory and anti-mutagenic activity, which means it helps combat many of the same illnesses that boswellia does. A number of laboratory studies on cancer cells have shown that curcumin does have anticancer effects. It seems to be able to kill cancer cells and prevent more from growing.

Lypo-Spheric Vitamin C – Available from pharmacy

2000mg Mixed with water

Studies have shown that high doses of vitamin C may slow the growth and spread of prostate, pancreatic, liver, colon, and other types of cancer cells.

Vitamin D – Available from Pharmacy 10,000iu

Mixed with olive oil and cannabis oil

Juice Plus Vege and Fruit Capsules – Available Online

TBL-12 – Online via tbl-12.com 2x tubs per day

TBL-12 is a natural product made out of marine ingredients, with the main ingredient being bêche-de-mer (sea cucumber). It works by modulating the immune system, which in turn helps fight cancer and other diseases. One box of 52 tubs (one months supply) costs NZD$1,124.17.

Liquid Hope – Online via functionalformularies.com

This is a liquid food full of organic vegetables and herbs to promote health and vitality and support the body’s natural immune system.

This costs $500.00 every 2 weeks.

Pro biotics

Pro biotics are used to help cancer patients. Pro biotics stimulate the immune system and eliminate carcinogens and directly kill tumor cells. These good bacteria also secrete B vitamins and vitamin K, which may slow tumor growth.

Essential Oils from Doterra - Available Online

Frankincense Extract—Boswellia

Peppermint

Copaiba

Myrrh

Tumeric

Black Pepper

A few drops of each with Olive Oil rubed on back of neck and diffuse.

Dandelion

Dandelion is a very rich source of beta-carotene which we convert into vitamin A. This flowering plant is also rich in vitamin C, fiber, potassium, iron, calcium, magnesium, zinc, and phosphorus. It's a good place to get B complex vitamins, trace minerals, organic sodium, and even some vitamin D too. Dandelion also contains protein, more than spinach. Dandelion may slow cancer's growth and prevent it from spreading. The leaves are especially rich in the antioxidants and phytonutrients that combat cancer.

Coconut Oil

Lauric acid is an active anti-cancer component in coconut oil that constitutes 50 percent of its makeup. Lauric acid is also beneficial in deterring parasites, bacteria, fungi, yeasts, and viruses.

Research to date and the reduction of the tumor these alternative natural medicines have accomplished will in turn provide hope and vital information for future family's who are touched by DIPG.

(After the givealittle fees) all of your donation goes towards Elyse's parents to assist with purchasing non-government funded medicine and medical care.

Supporting Elyse's involvement (page creator)

The Supporting ELyse vs DIPG goal here is to raise enough money to cover the costs of Elyse's medicine until a cure is found. I will keep on fighting until I have achieved this goal. - Vicky

Use of funds

Funds will be used to purchase Elyses non-government funded medicine

Other page links

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Latest update

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10th August 2021 UPDATE  10 August 2021

Earlier this month Elyse had her shunt replaced after complications with drainage. Unfortunately since then an infection has caused further serious complications and a sepsis infection which medical specialists are struggling to pinpoint.

So far Elyse has been to 3 different hospitals in 2 days transported by Helicopter 🚁

Endured:

3x iv lineS

1x mid-line and 1x PICC line

Lumbar puncture

Spinal tap

3x Finger pricks

4x Blood test

2x General anaesthetic

1x CT

2-6 weeks of antibiotics

6 Nights in hospital so far

2 x X-rays

And has been asleep for 48hrs and more test today

Please keep her in your thoughts and send some healing vibes, fluids antibiotics and medications don't seem to be helping and everyone is a bit stumped!

Thank you, your ongoing support means the world to the family!

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Latest donations

Hannah
Hannah on 13 Oct 2021
$10
SA
SA on 30 Sep 2021
Lots of love Elyse
$20
Terry
Terry on 24 Sep 2021
prayers are with you
$50
Rajpal
Rajpal on 20 Sep 2021
Very best wishes, love and strength'
$100
Deb
Deb on 10 Aug 2021
Sending love and healing to Elyse and family
$20

Who's involved?

Casey Johnson's avatar
Paying to a verified bank account of Casey Johnson on behalf of Elyse Johnson
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This page was created on 6 Dec 2017 and closed on 6 Dec 2021.