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Supporting Elyse vs DIPG

Cause page created in the Kiwi Kids category by Supporting Elyse for "Elyse Johnson"


$26,872 donated

Given by 247 generous donors in 2 years

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Elyse desperately needs ongoing donations to help pay for her Non-Government funded medicine - funds are running out fast.

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  Waikato

Thank you for your support to Elyses previous Givealittle page which received $62,399.50 between 9 Apr 16 and 14 Dec 17 This page was created because we still need your help!

Elyse still needs ongoing donations to help pay for her ridiculously expensive non-government funded medicine which is costing thousands of dollars every month!

Elyse was diagnosed with DIPG (diffuse intrinsic pontine glioma) on the 8th April 2016. An aggressive brain tumor with an expected survival time of 2-9 months from diagnosis. We are almost at 4 years past DX! During this time we have spent countless days researching effective alternative medicines that are effective in killing tumors and helping her body fight for itself. Since Elyse’s last paediatric appointment which went so well, she is continuing to show signs of improvement. Elyse has received so much support from the community but the donations received are running out. Fast! Please help by making a heart felt donation and sharing the Supporting Elyse facebook page & Givealittle page. We must keep working to spread the word and raise awareness of the Supporting Elyse Cause and DIPG.

Elyse is currently taking a number of natural medicines which are helping her fight this awful tumor. Unfortunately, like in many other cases, medicines that actually help aren't government funded. Below is what Elyse is currently taking;

Medicinal Cannabis Oil Tilray 10:10 CBD:THC – Prescription Only

This is an oral medicine costing $3.5k every month.

Lypo Tumeric—Curcumin – Available from pharmacy

Mixed with Olive Oil and Black Pepper Essential Oil

Turmeric has constituents that have been found to exert antioxidant, anti-inflammatory and anti-mutagenic activity, which means it helps combat many of the same illnesses that boswellia does. A number of laboratory studies on cancer cells have shown that curcumin does have anticancer effects. It seems to be able to kill cancer cells and prevent more from growing.

Lypo-Spheric Vitamin C – Available from pharmacy

2000mg Mixed with water

Studies have shown that high doses of vitamin C may slow the growth and spread of prostate, pancreatic, liver, colon, and other types of cancer cells.

Vitamin D – Available from Pharmacy 10,000iu

Mixed with olive oil and cannabis oil

Juice Plus Vege and Fruit Capsules – Available Online

TBL-12 – Online via tbl-12.com 2x tubs per day

TBL-12 is a natural product made out of marine ingredients, with the main ingredient being bêche-de-mer (sea cucumber). It works by modulating the immune system, which in turn helps fight cancer and other diseases. One box of 52 tubs (one months supply) costs NZD$1,124.17.

Liquid Hope – Online via functionalformularies.com

This is a liquid food full of organic vegetables and herbs to promote health and vitality and support the body’s natural immune system.

This costs $500.00 every 2 weeks.

Pro biotics

Pro biotics are used to help cancer patients. Pro biotics stimulate the immune system and eliminate carcinogens and directly kill tumor cells. These good bacteria also secrete B vitamins and vitamin K, which may slow tumor growth.

Essential Oils from Doterra - Available Online

Frankincense Extract—Boswellia

Peppermint

Copaiba

Myrrh

Tumeric

Black Pepper

A few drops of each with Olive Oil rubed on back of neck and diffuse.

Dandelion

Dandelion is a very rich source of beta-carotene which we convert into vitamin A. This flowering plant is also rich in vitamin C, fiber, potassium, iron, calcium, magnesium, zinc, and phosphorus. It's a good place to get B complex vitamins, trace minerals, organic sodium, and even some vitamin D too. Dandelion also contains protein, more than spinach. Dandelion may slow cancer's growth and prevent it from spreading. The leaves are especially rich in the antioxidants and phytonutrients that combat cancer.

Coconut Oil

Lauric acid is an active anti-cancer component in coconut oil that constitutes 50 percent of its makeup. Lauric acid is also beneficial in deterring parasites, bacteria, fungi, yeasts, and viruses.

Research to date and the reduction of the tumor these alternative natural medicines have accomplished will in turn provide hope and vital information for future family's who are touched by DIPG.

(After the givealittle fees) all of your donation goes towards Elyse's parents to assist with purchasing non-funded medicine, medical care, travel and general costs around making the most of their precious time together.

Thank you for your support to Elyse's other Givealittle page which received $62,399.50! We have opened this new page as she still needs help to pay for her ridiculously expensive non-government funded medicine!

Supporting Elyse's involvement (page creator)

The Supporting ELyse vs DIPG goal here is to raise enough money to cover the costs of Elyse's medicine until a cure is found. I will keep on fighting until I have achieved this goal. - Vicky

Use of funds

Funds will be used to purchase Elyses non-government funded medicine

Other page links


Latest update

4 years, 1 month, 17 days past DX  24 May 2020

Posted by: Supporting Elyse

24th May 2020

Elyse is growing in so many ways and every day making us proud. She is regaining movement in all of her fingers. Something that DIPG stole from her when it was at its worst. She is learning to write and even learning basic sign language. One of the most sweetest things to hear is the sound of her voice, which is gradually starting to return. Elyse you are making everyone so proud.

Read 16 more updates


Latest donations

  • Alan

    Alan on 15 May 2020

    $30

    Best wishes for the future and your DIPG battle.

    $30

  • Maurice

    Maurice on 14 Feb 2020

    $100

    $100

  • Kat

    Kat on 25 Jan 2020

    $50

    Praying for further healing for your darling wee girl :)

    $50

  • Storage4u Taupō

    Storage4u Taupō on 18 Jan 2020

    $500

    Keep up the great fight.

    $500

  • Michael

    Michael on 30 Dec 2019

    $100

    $100


Who's involved?

Casey Johnson's avatar
Paying to a verified bank account of Casey Johnson on behalf of Elyse Johnson

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This page was created on 6 Dec 2017 and closes on 6 Dec 2020.
$26,872 donated

Given by 247 generous donors in 2 years

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