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Supporting Kelsey Through Rare Kidney Cancer HLRCC and Beyond.

  • Cancer free

      17 December 2025
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    Dear donors n friends

    Thank you for your generous donations

    Without your donations, I wouldn’t be able to do radiation therapy n cope with living expenses . Yesterday my oncologist declared that they couldn’t find any cancer cells anymore.

    Thank you all so much. God has brought me this journey to change my entire life. From a person full of myself to total humility. I am recovering in a farm where I can eat healthy. Words cannot express my thanks to all of you for generous giving n prayers.

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  • 16th cycle

      26 November 2025
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    Hi friends,

    I been doing quite okay . Been able to volunteer n serve at church as a translator. Very thankful that my side effects are minimum. Have a really supportive oncologist Dr Kate. I am waiting for next scan . Count my blessings one by one.

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  • ongoing treatment

      18 November 2025

    I had ongoing treatment

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  • Genetics counselling session

      18 November 2025

    Praise God, I was told that I needed to wait 18 months for Genetics counselling, as my cancer was related to a gene defect, but now I will have an upcoming appt in December at Christchurch Hospital.

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  • Scan

      16 November 2025

    Hi friends , I had 15th treatment and will be going for my CT scan. I been quite joyful with God help.

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  • 15th cycle

      3 November 2025
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    Wow can’t believe I been through 15th cycle of treatments. Thank God for His grace and mercy. I started get forgetful. Pls pray for me.

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  • 12th cycle of treatment

      19 September 2025
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    Hi friends n donors

    Thanks for reading my update

    So far I am tolerating treatment well not much side effects:)

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  • continue target treatment

      7 September 2025

    i am carry on my 12th cycle of treatmet.

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  • treatment

      22 August 2025

    i continue my treatment

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  • Porta Cath insertion

      22 August 2025
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    Hi friends, thanks for reading through my updates.

    Initially, I was quite fearful of porta cath insertion,

    God is good. I had a successful porta cath insertion. I was cared very well by the nurse manager and the team at Nelson Hospital.The porta cath insertion took less than 1 hour. Though I was quite painful on my right arm, and find it difficult to wear a seat belt.

    When I focus on God, my pain seems to become lesser.

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  • CT scan report

      5 August 2025
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    hi friends,

    My oncologist told me today that my cancer is under controlled not sure whether it is active or passive. less than 0.5cm for 2 lesions. the radiologist reported similar Thank you for praying for me. I believed that one day God will heal me completely, I will be restarting my chemotherapy 10th cycle this thursday.

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  • Numbness

      29 July 2025
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    Last Friday my left hand n arm was aching n numbness

    Thank you Jesus that He hears me n answers me I much better

    Had a Ct scan yesterday

    I have been fearful of Ct scan due to radiation exposure n I was allergic to the contrast. My veins are quite thin at the moment

    God knows my needs He sent the best senior staff to cannulate me once and I felt inner peace in me. During observation period, a nurse came n remove the cannula . She said she is a Christian n I saw her wrist tattooed with Faith Hope n Love

    I felt God is with me.

    I been going to acupuncture n met this lovely acupuncturist she uses her heart n soul to treat me.

    Thankfully

    I

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  • Hydrotherapy

      25 July 2025
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    Hi donors thanks for reading my page

    I managed to start my first hydrotherapy session

    The surgery caused my muscles to be very tight

    Thankful to God for having 4 sessions

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  • Hydrotherapy

      25 July 2025
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    Hi friends, thanks for reading my page . I am thankful that I have started hydrotherapy sessions conducted by physiotherapists at Nelson Hospital n I highly recommend this for those who underwent major surgery to recover.

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  • Pathology

      22 July 2025
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    I am surprised to receive a letter that my pathology images will be used to publish in a New Zealand n Australia doctors conference

    Hope there is more awareness in hlrcc.

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  • Received an email from Minister of Health in New Zealand

      30 June 2025
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    I am surprised and thankful that the Minister of Health is prompt in the action. I have been referred to Rare cancer Australia for further research.

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  • MOST trial

      27 June 2025

    I am involve in genetic testing to try see whether there is a match therapy

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  • Skin lesions

      25 June 2025
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    I had skin bumps n it been scanned by my GP to check whether it is cancerous

    Would need prayers

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  • Dental visit

      21 June 2025
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    I been wondering the chemotherapy has affected my teeth as I been to dentist 6 times

    Yesterday I prayed n God helped me n rang dental dept in Nelson hospital n they ask me to go on the day

    Toothache has affected me

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  • 8th cycle chemo

      21 June 2025
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    Because of needle phobia I put Elma cream on my arm n prayed very hard thank the lord Jesus that He helped me nurse manage to cannulate me once my blood test been really improving with my kidney function creatinine 115

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  • MOST trial

      17 June 2025
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    Hi Friends, I am very thankful that I will be starting the MOST trial (Molecular Screening and Therapeutics) Trial at Auckland City Hospital to test for personalised treatment for myself.

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  • Next round of TARGETED THERAPY

      27 May 2025
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    Hi donors, thank you for your kindness. I have restarted my Avastin+ Tarceva to target the remaining 0.35cm by 0.85cm tumour.

    By June, I will know which exact drug target for this tumour. I have 4 dental visits and thankfully the dentist waived off the huge dental fees. I will be starting physiotherapist to gain strength.

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    • 30/05/2025 by Coco

      Hi Nina! You are not alone. I had a radical right nephrectomy due to HLRCC, mine was huge. I was stage 3. NIH studies this condition very closely, as well there is a wonderful and encouraging facebook group full of knowledge that I recommend called HLRCC Foundation: Knowledge Saves

  • SBRT and PET Scan

      16 May 2025

    I am planning to seek SBRT ((Stereotactic Body Radiation Therapy) for the remaining liver lesion in malaysia. please pray for me as I seek guidance

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  • CT scan report

      7 May 2025
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    It has been nervous to receive my CT scan report. I am very thankful that the tumour shrink to 0.35cm in the liver. The lesion in the bone are completely gone and the rest of the organs are normal.

    Very thankful that God healing me in the process.

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  • dental treatment

      2 May 2025
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    hi friends and donors, thank you for praying for me. I will soon be going for teeth extraction at Nelson city hospital.

    When I am weak , He is strong.

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  • Upcoming CT scan

      30 April 2025

    hi friends and donors, thank you for checking on my page and sending your donations and prayers.

    I had completed 5 cycles of Avastin and Tarceva. Thank the Lord Jesus, I didn't experience any major side effects such as Acne. I did bleeding on the gums often and recently went to emergency for tooth ache. Thankfully accupuncture does help to relieve my pain.

    I am going for my CT scan tomorrow to check the respond of the treatments. Lots of people are praying that I be cleared and completely healed.

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    • 01/05/2025 by David

      Keeping you in prayer, Kelsey!

  • 2 weekly blood test n porta Cath insertion

      5 April 2025
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    Hi

    Friends

    Thanks for your contribution

    I have 2 weekly blood test n soon going for porta Cath insertion as my veins getting smaller n harder to find

    I am still praying that I cleared of cancer.

    This plebomist has been taking my blood tests regularly thank God for her.

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  • Blood test result

      28 March 2025
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    Hi all

    I feel that I on the road to be cured

    The oncologist was very positive about my situation

    And she said that she is treating to eliminate any micro cancer cells

    I thought she had strong faith

    I been going for detox therapy such as drinking lots of lemon water using olylife machine and accupuncture I started using food detox n my blood tests are getting soo much better

    Praise the Lord

    Thank u for your kind words n donation

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  • Accupuncture

      22 March 2025
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    Dear donors thank you for your kindness

    Your funds has allowed me to do accupuncture to relieve lower back pain I go twice weekly for accupuncture.

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  • Latest clinical trial research

      20 March 2025

    I had my 2nd cycle of Avastin and Tarceva in Nelson hospital, feeling very fatigue.

    On accupuncture. will be updated my photo

    Currently on sick leave with no pay. Trying to get access to Work and Income for Supported Living Payment and Work Indemnity Insurance.

    I will be meeting up a consultation with National Insitute of Health

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  • Treatment

      12 March 2025
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    Thanks for your kind donation

    Your donation has enabled me to do extra medical help such as getting Chinese medicine such as cupping , Chinese therapy massage and accupuncture treatment to improve my immune system n kidney function. I am very thankful that I can get access to treatment in Nz and have started my funded immunotherapy treatment today in Nelson Hospital.

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  • Oncology appointment in Nelson Hospital

      10 March 2025
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    Thankfully I managed to return safely to NZ. I met my lovely oncologist Dr Ana. She said only 4 people in NZ got diagnosed. I am thankful that I be continue Avastin and Tarceva . Dr Ana also referred me to Omico Australia. She said there is another 2nd line drug Cabozantib and Nivolumab I am very thankful to have an experienced consultant treating me. I will take this time to spend time with my family.

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  • Kidney function

      6 March 2025
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    It been pleasing to know that after I switched to plant based diet n with lots of prayers, use of massage, Oly life machine my kidney function improves n I was able to continue Avastin. Thank God for the help. I am feeling well sometimes I do have general itch due to high creatinine level.I am thankful that my creatinine has dropped from 152 to 124. Went to National cancer centre to check for clinical trials however I was ineligible as I started Avastin

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  • National Insitute of Health

      4 March 2025

    I am very thankful that I will be having a telehealth appointment with the experts of National Insitute of Health in HLRCC on this coming Wednesday. God is Jehovah Rapha

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  • Appeal for funding for Non-Pharmac approved drugs

      1 March 2025
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    I am hoping to carry on Avastin however my kidney function is not optimal.

    sadly to say that NZ has no other funding. and I am selling my property just to it.

    At this time of writing, I wrote to the health minister and NZ herald re: this

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  • Completed Radiation therapy

      28 February 2025
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    Thank you donors your kind donation has allowed me to go for Sabrt for my liver n bone lesions

    I feel very fatigued n cough alot

    God is our healer

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  • Radiotherapy

      25 February 2025
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    Hi all

    My kidney function has slightly improved but not much I started plant based diet

    At the moment

    I started my first session of Radiation therapy in Makhota medical centre

    Thankful that the oncologist planned this treatment within 1 week

    Praying for kidney function to be better

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  • Omico Auckland

      22 February 2025
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    Omico Auckland cant help me enrolled into the clinical trials programme as I am not a resident in Auckland. This news is disappointing to hear about the healthcare system in New Zealand.

    Thankfully National cancer centre Singapore and Omico Australia can help me in this matter.

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  • SABRT

      21 February 2025

    Hi I am delighted to share that I will start my radiotherapy next Tuesday

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  • Omico

      19 February 2025

    Rare cancer Australia has been in touch, hoping that they can send my tissue for molecular testing . God is good.

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  • Oncology appointment in NZ

      17 February 2025
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    I am pleased and very thankful that I manage to see an oncologist Dr Anna from Nelson District Health board through my uncle referral letter.

    Dr Anna is going to apply for public funding. Next Christians, please pray for my healing for kidney function so that I can receive next round of immunotherapy.

    I am waiting to go to Malacca for my radiation therapy.

    At the moment, I do feel tired.

    therefore, i try rest as much.

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  • Oncology appointment NZ

      14 February 2025

    I am glad that God has answered my prayer.

    I have a zoom consultation appt with an oncologist in NZ.

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  • Radiation therapy

      14 February 2025
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    Hello donors n friends

    Thank you so much

    I will be starting Sterotatic Ablative Radiation therapy soon

    I felt very blessed to be treated by my oncologist so promptly

    Pray for the oncologist for wisdom to treat me

    I enjoyed my time in Malaysia and the healthcare team in Makhota medical centre are pretty amazing.

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  • Miracle

      13 February 2025
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    I like to share an update

    In January 2025

    Ct scan show several liver lesions

    My latest Pet scan result show only 1 liver lesion n suspicious bone lesion in pelvic region

    Praise God that Jesus heals

    I be going for radiotherapy and ur funds will help me

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  • Pet scan

      11 February 2025
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    Hi donors thank you for your donation

    I am currently still waiting for nz oncology appt

    I doing Pet scan today to check it is costly however ur donation has helped

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  • Positive update

      8 February 2025
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    I manage to get in touch with so many help such as people from rare cancers n national institute of health

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  • Genetic testing

      5 February 2025

    Thank you everyone for the donation. I am getting my kids to undergo the genetic testing. Your kind donation helps us.

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  • Side effects from treatment

      4 February 2025

    Thank you friends I am very thankful to your support

    I attached a video

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  • next PET SCAN AND MRI brain

      27 January 2025

    Dear donors, thak you for your kind donation. My next investigation will in Malaysia at Makhota Medical centre in Mid Feb. I will be going to PET scan and MRI Brain. " This is eternal life, that they may know You, the only true God, and Jesus Christ whom you have sent." John 17:3

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  • Targeted therapy

      25 January 2025

    I have started my first cycle of Targeted therapy in overseas.

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