February 2016 update
25 February 2016Here's another update from the amazing Kelly...
Apologies for the late update.
As you know I had my third brain surgery (12 months to the day of my first) in December after the surgery day being bumped along for a couple of days in Wellington. It’s a shame there was someone more needy than me, as it means someone must have had a rough day. Remember that every time your surgery gets bumped, it’s possibly because someone else needs your spot more urgently.
We made the most of the time as a family and spent some time tripping around Wellington until my surgery. Meant another week of accommodation to find, but Brendon managed!
Surgery itself went well, it’s taken me a long time to recover this time though. A lot more fatigued.
The Avastin is on hold at present – there had to be a period of time before and after surgery of not giving it due to the risks associated with wound healing etc.
Unfortunately I got a clot in my leg also, after surgery, so am now on a drug called clexane to stop my blood clotting as quick.
I have completed another treatment phase of Radiotherapy (28 doses), with no chemo. Avastin could be used with radiotherapy but it makes you more sensitive to the radiotherapy, which is something that is not ideal in my situation as it is my second time around of having radiotherapy. It might be too much radiation to the brain.
I have had 2 MRI scans of my brain since surgery, which have been ok, but we know it is aggressive so I’m keen to get the next phase of treatment underway. I hope to meet with my medical oncologist very soon to make a plan. We are keen to look at immunotherapy options in addition to the Avastin if need be.
Thank you for all your ongoing support. The wee boys have done well coping with the changes in routine, and Brendon is recovering well from his shoulder surgery.
The presentation to PHARMAC went well, but it could be another 6 months before we hear anything yet! Lets hope we can get Avastin funded for those that may benefit from it!
Your messages are truly welcome, but I may be a little slow at replying depending on the day! I’ll update you further once I have something to report.
