Support Stefano Guidi to deal with MND / ALS
Stefano has been given two years to live. Please help support him, his wife Anna and their new baby Matteo through the challenges ahead.
Just before the birth of his first child Matteo, my friend Stefano Guidi was diagnosed with the most aggressive form of MND / ALS otherwise known as Lou Gehrig's Disease, which causes the death of neurons and results in muscular atrophy. He will have difficulty speaking, swallowing and eventually breathing. Stefano has been given two years to live.
The news was a terrible shock. This passionate Italian wine maker and beautiful family man had only recently moved to NZ to create a new life with his talented wife, the New Zealand soprano Anna Leese.
This is a devastating blow for a new family. Already Stefano has severely reduced working hours and faces many frightening challenges ahead. These challenges will require great emotional, physical and financial support.
Stefano is investigating treatment programmes but the reality of this terrible disease is a swift decline in physical capability. Donations will allow Stefano some freedom to make the most of life, especially while he is physically able and help support his family.
While we can't always help with the day to day support, we can give a little, or a lot to help this family out. Stefano and Anna are both proud and generous people who have given great pleasure to others through their gifts. And now we've a chance to return the favour when they need us most.
Please help Karyn, Natalie, Madeleine and I show our love and support for Stefano.
This page has been created with the permission of Stefano and Anna
If you'd like to know more about ALS/MND then there are some great resources available on both the NZ and UK MND Association websites (links below).
It's a terrible disease that has no cure, so the best thing we can all do is love and support Stefano and his family to make the most of their time together just now.
Clarissa Dunn's involvement (page creator)
I am a friend of Stefano and Anna's
Stefano and I would like to write a blog to keep those of you who would like to follow our story updated about the progress of his fight with MND. Here's the link:
First and foremost we are so grateful to the hundreds of our friends and friends’ friends who have donated to the Givealittle page, in order to help us pursue different medical paths for Stefano. Thank you so much, without it we would not have many options available to us. We are also realistic about the possibility that we may not find a treatment for Stefano which will improve his outcome, so some of the funds will help us to fulfill a few of his dreams. We will keep you updated about that also.
Last week we returned home from a trip to Italy, where Stefano spent some precious weeks with his family and close friends. His brother Alessandro, who is in the medical profession in Florence, scouted out ALS specialist Dr Vincenzo Silani* in Milano, and luckily Stefano was prioritised on the wait list and able to spend two days with him doing extensive testing during our trip. We now await the results from those genetic tests, some due end of July and some due end of August, which will dictate whether or not Silani is able to assist us further.
We all flew to Wellington directly after landing in NZ from our Italy trip, for Anna’s Orchestra Wellington concert**, and are now back home in Warkworth recovering. Poor Matteo is now happy to be home in his own bed, he has just about spent more of his life traveling than at home!
Thank you for your support, your concern and your friendship during this ongoing trial.
Anna, Stefano and Matteo
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This page was created on 6 Jun 2016 and closed on 6 Jun 2017.