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The gift of a lifetime - Updates - Givealittle

  • APD Training     5 August 2019
    Posted by: James Pratt
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    Fantastic news!!!

    Training for my Automated Peritoneal Dialysis (APD) was moved forward and I successfully completed it on Thursday, 01 August 2019.

    I now have a machine (cycler) that now delivers and then drains the cleansing fluid for me while I sleep, this treatment takes 9 hours.

    The machine is programmed to control the fluid movement, using a series of clamps and pumps. It controls when the fluid should drain out and when new fluid should be put in.

    Louise and I both went through the training at Margaret Stewart House in Wellington and our trainer Jane has been absolutely amazing as usual. We always look forward to seeing Jane, and her support and after care follow up has been second to none.

    My amazing and beautiful wife Louise, has been Wonder Woman, setting everything up for the new cycler and allowing me to just focus on my treatment. She continues to make this whole situation so much easier for me. I can't thank her enough for everything she has done to date.

    I will continue to keep you updated on this journey and thank you so much for your continued support, prayers, donations and love.

    Much love to you as always

    James

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  • Dialysis Training     23 July 2019
    Posted by: James Pratt
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    I have now successfully completed the Peritoneal Dialysis (PD) Training and am now setup to do dialysis 4 times a day.

    Louise and I both went through the training at Margaret Stewart House in Wellington and have been blown away by how amazing our trainer Jane was with us making us both feel very comfortable and allowing us to gain confidence.

    We are so happy and grateful for Jane and the rest of the community dialysis nurses.

    A very special shout out to my beautiful wife Louise, she has made this whole situation so much easier for me, setting everything up at home and making my dialysis exchanges so easy for me to do.

    I couldn't have done this without her and feel blessed everyday having her in my life.

    I will be doing manual exchanges for the next 4 weeks, then I will be trained on how to do Automated Peritoneal Dialysis (APD) which is a machine (cycler) that delivers and then drains the cleansing fluid for me. This treatment is done at night while I sleep.

    I will continue to keep you updated on this journey and thank you so much for your continued support, prayers, donations and love.

    Much love to you as always

    James

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  • Operation     24 June 2019
    Posted by: James Pratt
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    On Friday, 21 June 2019 I went into Wellington Hospital for Surgery to Insert a Peritoneal Dialysis Catheter. This was my first time ever that I have been admitted into hospital or gone to Hospital for myself and it was truly an amazing experience.

    Everything ran like clockwork and I was blown away by how amazing the staff and services were.

    100% successful surgery and recovery has been so quick. I was discharged on Saturday at 2.00pm and am now home for the next two weeks to allow me to fully heal and recover.

    I will then start a weeks training for dialysis.

    Louise has been an absolute Wonder Woman and has made this all so much more easier. I can't tell you how happy and grateful I am for her, she is worth her weight in gold and then some.

    Thank you all for your continued support of well wishes, prayers and donations. Your support empowers me and I am so happy and grateful for you all!!!

    Much love

    James

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  • Initial Operation Assessment     19 June 2019
    Posted by: James Pratt
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    Had my initial operation assessment this morning. I had my first ECG done, that was a new experience.

    I also had an anaesthetic pre-assessment for my surgery on Friday and met with the Renal Nurse to answer any questions I may have.

    Everything went so smooth and even managed to get my blood tests done at the Hospital, which will save doing it on Friday morning.

    Health wise I am feeling really good.

    This will be my first time I have ever gone to the hospital and will be staying for one night and two days. Home on Saturday if everything goes to plan.

    Will update you all then.

    Much love to you all as always

    James

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  • Next Stage     13 June 2019
    Posted by: James Pratt
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    Louise and I have just been blown away with everyone’s kind thoughts, prayers, donations and well wishes!!

    I have found it incredibly difficult to reach out to everyone as I have always been more of a giver than a receiver.

    I have recently met with my Medical Team to review my latest monthly blood tests. They have continued to highlight the decline in my kidney function (which is now 4%).

    The plan moving forward is to start dialysis, which will give me a much better quality of life. I have an initial operation assessment set down for Wednesday, 19 June 2019, followed by the operation on Friday, 21 June 2019.

    There will be about two weeks to allow time to heal before I start a weeks long training on how to perform the daily dialysis.

    Thank you so much for all your amazing support!!! It truly means a lot to me and is helping me in more ways than you will ever know.

    I will continue to keep you all updated on this journey and wish you all nothing by great happiness and success.

    Much love to you all as always

    James

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  • You are my backbone and strength     18 May 2019
    Posted by: James Pratt
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    I am completely overwhelmed with all the love and support I have received from so many people. For everyone who has reached out, your support means more than you'll ever know and more than I'll ever be able to express. It has created a backbone of strength to help me reach my goal!

    Much love to you all

    James

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  • Thank you!!!     11 May 2019
    Posted by: James Pratt
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    Thank you so much for all the donations so far, so very happy and grateful for everyone's support.

    I have been getting some people contacting me asking if this is a scam so I am now contacting everyone directly. Apologies if you have already seen it.

    If you are ever unsure, please feel free to contact me.

    Much love

    James

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  • Appeal Launch!!     9 May 2019
    Posted by: James Pratt
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    Huge milestone today launching my appeal, just wanted to thank everyone for their support and donations so far.

    Special thank you to my beautiful Wife Louise and my most amazing Brother Vince for all their help and feedback with getting the content up and making sense.

    I will be updating on a regular basis just to keep you in the loop and to share this wonderful journey with you all.

    Much love

    James

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