The greatest gift for Grace.

$10,295 donated
Given by 174 generous donors in around 3 months

At only 14 years of age, Grace urgently needs a liver & pancreas transplant to save her life, & will be apart from her family for 4 months.

Taranaki

Let me introduce you to Grace... at just 14 years of age Grace is one of the most bubbly, energetic, positive, selfless people I have ever met, Grace has a heart of pure gold & with the support of her parents Sean & Jess, Grace has established her own Charity called "Grace's gifts" where she spends her free time fundraising to help families who unexpectedly find themselves hospitalised & provides them with emergency care packages to get them through their hospital stays.

What alot of people don't realise is that Grace herself suffers from the rare life limiting condition, Cystic Fibrosis, the ONLY effective treatment available for this disorder is currently NOT funded by pharmac & at a cost of $330,000 per year her family have been unable to provide this for Grace.

Subsequently, Grace's body has been irreversably damaged by cystic fibrosis, in Grace's case this has resulted in severe permanent unreversable damage to her liver & pancreas..... Grace's health has now deteriorated to the point that, in order to save her life, Grace urgently needs a liver & pancreas transplant. As of last week, Grace is officially on the transplant waiting list, her life literally depends on it.

Grace & her family are about to embark on one of the most stressful and terrifying challenges of their lives.... I want to try and alleviate some of their anguish by reducing their financial stress in order to allow them to travel to be by Grace's bedside while she undergoes her transplant & recovery.

Mary Weir's involvement (page creator)

I am a close friend of Grace's parents Sean and Jess.

Use of funds

All money raised will enable Grace's family to be by her side to support her while she undergoes and recovers from her life saving transplant.

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Latest update

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Our beautiful girl  3 August 2022

Posted by: Jessica Paterson

To the mothers and fathers like me who mother children with medical fragility:

I commend you:

~ for all of the times you got up in the night to soothe an inconsolable child. Neurological irritability is the devil, making a mockery of us every single time we rock and comfort our children in vain.

I acknowledge your patience:

~ for all of the times you have been physically exhausted and injured from lifting and carrying your child

~ for all the times you didn't curse when you dumped stomach content on yourself or the floor

~ for all the times you wanted to scream but instead held it together again and again and again

I honour you:

~ for your determination in always finding solutions and answers to seemingly insurmountable problems (or at least never giving up on finding them)

~ for creating a safe and happy environment for your other children in spite of your fears and worries

~ for managing a home or a job or a friendship or a marriage on top of all that you manage

~ for courageously facing a future that is bleak and still maintaining a sense of hope....no matter what

I praise you:

~ for finding strength and resilience that I know you had to dig deep to unearth

~ for finding humour when laughter seemed counter-intuitive

~ for weeping in the quietest moments when you would rather read a book or shave your legs but instead you tend to your grief

I salute you:

~ for making this unique kind of mothering look effortless

~ for bravely rising up again and again even when throwing in the towel feels like a viable option

~ for taking the new moms under your broken, battered wing so that your wisdom may make their journey a little less harrowing

I bow to you:

~ for caring for your child through tests, trials and experimental drugs

~ for sitting vigil knowing that your child's days were coming to an end

~ for the unimaginable broken heartedness you endured upon your child's death

~ for waking up each morning and continuing to live without them

Today I celebrate all of you:

~ for demonstrating the meaning of MOTHER which comes down to unconditional love

~ for being the incredible mother that you are with all of your strengths and weaknesses, talents and imperfections.

May you fully understand the sacredness in fiercely loving your child without ever feeling little arms around your neck in a hug, hearing the words "I love you" or receiving the gift of hand picked dandelions.

I am honoured to be in your company.

Copied from another amazing CF mum ❤

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Latest donations

Shelley
Shelley on 11 Aug 2022
$30
Jessica Paterson

Thankyou Shelley ❤❤

Jessica Paterson
Hasely
Hasely on 11 Aug 2022
$100
Jessica Paterson

Thankyou Hasely ❤❤

Jessica Paterson
Nick
Nick on 10 Aug 2022
$25
Jessica Paterson

Thankyou very much ❤❤

Jessica Paterson
Jamie
Jamie on 03 Aug 2022
$100
Jessica Paterson

Thankyou very much Jamie ❤❤

Jessica Paterson
Guest Donor
Guest Donor on 01 Aug 2022
$20
Jessica Paterson

Thankyou very much ❤❤

Jessica Paterson

Who's involved?

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Jessica Paterson's avatar
Paying to a verified bank account of Jessica Paterson
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This page was created on 13 May 2022 and closes on 13 May 2023.