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Multiple Sclerosis- The End & Beyond

  • Memorial service

      25 March 2022

    I plan to hold Mum's funeral service on her Birthday April 21st. This not only gives me time to save money to make it one that truely honors the beautiful human she was, but also time for me to get my head around the fact that I'm doing this.

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    • 12/03/2025 by Stella

      I was living with MS for years before being officially diagnosed in 2021. I got annual MRIs, and I did not take any meds due to side effects. I had one flare up in 2021. My legs decided to a break, and I was numb from the waist down. I decided to try MS-4 from Uine Health Centre. The numbness and Muscle spasms went away after a couple of weeks, but it took almost 3 months to walk properly without a cane. In June, it will be four years without incident, and I am extremely happy that I made the decision to not take any meds and went for the MS-4 formula even though my neurologist got upset and one told me to quit my job because I will be disabled. Well, I am not disabled, I still refuse to take those meds, and I am doing just fine. Believe in yourself and go with your instincts. Doctors don't know it all. I’m surprised a lot of people with MS haven’t heard of the MS-4 protocol, I got the treatment from uinehealthcentre. com I am absolutely confident that this protocol offers a viable solution. I hope you find it helpful.

  • Time and the stages of Grief

      25 March 2022
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    It's been just over 2 weeks since Mum passed. I find the sadness comes in waves along with the new emotion of anger. Anger that The Rest home would not let me see her despite me knowing and insisting she was extremely unwell and they repeatedly said she was fine! Anger that I didn't do more.. Could I have done more? Honestly I felt like I was doing everything i possibly could have done. I had made her situation my full time job every spare minute I was on the phone to someone trying to get visitation, trying to find a way to bring her home but there will always be a part of me that wishes I did more :/

    Frustrated that I was, like many others in a position where my Mum was dying and I was not being allowed to see her due to the stupid Covid mandates which are now all but over! Sadly the wreck of emotions are not. I have all Mum's things at home now, I can't bring myself to go through them yet and the feeling that the only human that loved me unconditionally now sits in a box of ashes beside my bed is not very comforting.

    I know Mum would like the idea of having her service on her Birthday April 21st so I'm still working to that date. I have looked through some of her photo albums, gosh she was so stunning, I wish I had have told her that more when she was here. I have posted one of the photos I found of her and a man named Father who has never been part of our lives. Thanks for your support

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  • Picking up the ashes

      17 March 2022
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    Yesterday was another milestone in the Journey of Mum's legacy on Earth. I was given a quite large bag with a wooden box in it with her ashes. I was surprised how heavy it was. I wasn't sure how I felt. It didn't make me feel more connected to her but maybe in time it will. I started a 'Remembrance Page' where you can write her a message and it will stay online forever, eventually achieved but still attainable. If you would like to write her a message the link is https://www.amemorytree.co.nz/remembrance.php?personid=1516067786232699fa4a874

    Im thinking of having her service on her Birthday April 21st next month so I can try and make it really special for her.

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  • Cremation Day March 9th 2020

      9 March 2022

    Today I held my Mama's hand and kissed her forehead for the last time. We followed her out to the crematorium and said our final Farewell. I know we will meet again until then there’s a big part missing. Love your Mama you won’t realise just how incredibly special she is till she’s gone 😇💔🦋

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  • The Funeral Home

      8 March 2022
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    Today is the second day Mum has been in the funeral home. After spending those last intense 48 or more hours with her, now feels a whole new kind of weird, yesterday when I saw her I was thinking it was less than 12 hours ago I was kissing her warm forehead. It feels incredibly surreal to be talking to her so cold and lifeless. I did kiss her cheek though and the room is basically a refrigerator with carpet. Truth is, I've never had anyone close to me pass away so everything that happens next takes me by surprise... perhaps a more accurate description would be shock! I didn't expect the funeral home to come and put her on a metal board and wrap her in a sheet followed by a heavy plastic and belts to keep her still. that was hard to see. Waving goodbye as they left was heartbreaking as was walking back into her room where we had spend all that time together and now she was gone. It's all very surreal and I feel like the sadness comes in waves. Thanks for supporting my page. I hope to raise enough money to give her the beautiful service that she deserves.

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  • Surprised but not surprised

      8 March 2022

    On thursday the 3rd at 6pm i had a text from the home saying Mum was really sick and they were taking her to Hospital, so I dropped everything and came. Mum had a plan that when this happened again she wouldn't go to Hospital but be surrounded by friends & family. Which was never going to happen due to Mandates, they only just agreed to let me stay. It's an incredibly flawed system that has ruined many loved ones lives already. I had to fight so hard for her wishes to be upheld and to stay with her in light of the Covid Mandates restrictions, I promised her I would not leave her alone. So finally, they agreed only me could be with her, and we took her back to her room from the ambulance. That night was extremely distressing I didn't sleep for a second.

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  • This is not right!!!

      3 March 2022

    This is so unfair!! The hospital where Mum lives called me tonight to say no visitors are allowed in as the number of covid cases are too high! I just want to go and get her now but I can't because I can't look after her. I don't know what to do :(

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