Trike needed to help prevent further deterioration of our sons spine, also for losing weight due to his rare syndrome Prader-willi syndrome
Canterbury
Hi I have a wee boy Dekken who's special needs. He has prader-willi syndrome and this year alone its been a very rough ride medically with him with double hip and double femur surgery etc.
We have been exploring trikes for him but it has to be a specialised one because of his disabilities etc.
We now have to add into his already complicated medical side, scoliosis of his whole spine, possible collapsed C3 vertebrae and his S1 vertebrae has fused and not formed right(this we found out on thursday)
So the hunt for a trike became more complicated.
Trikes nz who specialises in bikes for disabled was in town today so we went and met up with him and the trike suitable for dekks is 10k :(:(:(.
We have applied to a couple foundations and will be adding these contributions.
To put towards buying a specialised trike for him
Exciting news 22 October 2020
Exciting news we were approved some funding today to go towards the trike, so we only need to now raise $1400
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