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SUPPORT FOR 4 RARE BRAVE TRISOMY9M KIWI KIDS

Closed Cause page created in the Kiwi Kids category by Amanda Davies for "Trisomy9M Brave Kiwi Kids Tegan Jenkins, Amira Said, Nate Ryan-Chang, Lily-Grace Davies"


$153 donated
Given by 6 generous donors in around 12 months

Please help support these 4 Brave Kiwi kids living with a 1 in 100 million rare condition Trisomy9m They will need ongoing help with funding

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  Auckland Sick Kids

Trisomy 9 Mosaicism is a random 1 in 100 million condition. These 4 Amazing Kiwi kids have already beat the odds of their life limiting prognosis & are a joy to us all. They will however need ongoing financial support, as their long term outlook is unknown. it is a credit to their parents dedication that these children are thriving despite their different disabilities.

Amanda Davies' involvement (page creator)

I am involved as I am the mother of the youngest T9m child and I want to provide a place for funding for these four brave precious kids defying their prognosis but still needing ongoing financial help

Use of funds

Funds will be used for

Ongoing care. Specialised walkers. Cochleal implants. Buddy Dogs. Therapies including speech, OT, Physio & Music. Non funded medicines. Respite & nursing care, & maybe some time out for the parents 😊 There are more the other parent can tell you, but we don't have a trust, we stand alone as 4 unique Kiwi families just needing a little backing.

Other page links


Latest donations

Guest Donor
Guest Donor on 18 Feb 2018
:)
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Guest Donor
Guest Donor on 12 Mar 2017
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Guest Donor
Guest Donor on 10 Mar 2017
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Guest Donor
Guest Donor on 10 Mar 2017
$1
Guest Donor
Guest Donor on 10 Mar 2017
$1

Who's involved?

Amanda Davies's avatar
Created by, and paying to a verified bank account of, Amanda Davies on behalf of Trisomy9M Brave Kiwi Kids Tegan Jenkins, Amira Said, Nate Ryan-Chang, Lily-Grace Davies

Page Moderated The page has been checked by our team to make sure it complies with our terms and conditions.

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This page was created on 10 Mar 2017 and closed on 9 Mar 2018.
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