SUPPORT FOR 4 RARE BRAVE TRISOMY9M KIWI KIDS
Please help support these 4 Brave Kiwi kids living with a 1 in 100 million rare condition Trisomy9m They will need ongoing help with funding
Trisomy 9 Mosaicism is a random 1 in 100 million condition. These 4 Amazing Kiwi kids have already beat the odds of their life limiting prognosis & are a joy to us all. They will however need ongoing financial support, as their long term outlook is unknown. it is a credit to their parents dedication that these children are thriving despite their different disabilities.
Amanda Davies' involvement (page creator)
I am involved as I am the mother of the youngest T9m child and I want to provide a place for funding for these four brave precious kids defying their prognosis but still needing ongoing financial help
Use of funds
Funds will be used for
Ongoing care. Specialised walkers. Cochleal implants. Buddy Dogs. Therapies including speech, OT, Physio & Music. Non funded medicines. Respite & nursing care, & maybe some time out for the parents 😊 There are more the other parent can tell you, but we don't have a trust, we stand alone as 4 unique Kiwi families just needing a little backing.
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This page was created on 10 Mar 2017 and closed on 9 Mar 2018.