TSCNZ National Conference Fundraiser

$0 donated
Started 20 days ago

Raising funds for a National Tuberous Sclerosis Complex New Zealand Conference

Nationwide

TSCNZ (www.tsc.org.nz) is a registered charity that supports New Zealanders affected by Tuberous Sclerosis Complex (TSC); a rare genetic condition that causes benign tumours to grow in different organs of the body. TSC commonly affects the brain, skin, heart, lungs and kidneys. Around 90% of people with TSC develop epilepsy and many have autism and intellectual disabilities. There is no cure, but with appropriate support people with TSC can live fulfilling lives.

Living with TSC is challenging; from coming to terms with the diagnosis, to navigating complicated health, social and education systems, to constantly advocating for fair opportunities to lead a good life.

TSCNZ holds national conferences so that families can get together to share their experiences, learn from expert speakers and discuss what the organisation can do to better inform, connect and support them. You can watch previous conference sessions, which we film to create resources that are available to all, on our YouTube channel: http://www.youtube.com/@tuberoussclerosiscomplexnz5927

We rely on donations and small grants to run our conferences.

About us

Tuberous Sclerosis Complex NZ empowers people affected by TSC through access to up to date information, support and advocacy for best treatment options.

Use of funds

All funds raised through this page will contribute to the costs of running the next TSCNZ National Conference.

These include venue hire, catering, a videographer, speaker expenses and Travel/Accommodation Grants for the TSC Community.

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2% Effective Fee
On average, fundraisers pay just 2% to use Givealittle. This is one of the lowest effective fees in New Zealand fundraising. We charge a 5% platform fee to cover the cost of running the platform. Because most donors choose to top up their donation to cover this fee, the effective cost paid by fundraisers is about 2%. That means around 98 cents of every dollar raised goes to the cause. Learn More

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Who's involved?

Tuberous Sclerosis Complex New Zealand's avatar
Created by, and paying to a verified bank account of, Tuberous Sclerosis Complex New Zealand (Charity)
Registered Charity
A Registered Charity has legal recognition under the Charities Act 2005.
Tax credit
Donations of over $5 are eligible for a New Zealand charitable giving tax credit.
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This campaign started on 22 Dec 2025 and ends on 22 Dec 2026.