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Urgent Support Needed: Relieving Perry, Dawn and Rain's Financial Burden Due to Sudden Illness.

  • June Update Part 2

      11 June 2024
    Posted by: Dawn Grace Kelly

    On day 7 he came home in an ambulance as he can barely stand or walk.

    We are a couple of days into the transition from hospital to home, it's challenging in many ways. His needs are much higher than before. He is in bed, quietly healing -- and I am here with him.

    He is on oxygen 24/7 now. We are trying to find a new groove, which will take some time. I cannot leave the house without cover -- which i need to implement asap! (Margi -- Perry's mum and my wonderful relief supporter, got Covid so she's out of action for a little still - what a blessing Perry didnt catch it - they were close that same day!)

    My hats are changing rapidly. Meals and tending to him are primary. We have nurses who come weekly now to change dressings (a few pressure sores from no movement for so long) We will try one of the carer agencies (random people at kinda random times -- not so keen, but we hope it may help me)

    We are STILL learning more about ourselves as more is stripped away. We are still grateful for our deep connection to one another. We are so solid in the awareness that, if it is his time to transition soon, it is Divine, Right and Wonderful.

    What a journey it continues to be. OMG!

    Your prayers and love are always welcome!

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  • June Update Part 1

      11 June 2024
    Posted by: Dawn Grace Kelly
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    Ringing an ambulance for the first time ever is a thing. A stressy kinda thing.

    Perry recently went to hospital in an ambulance. He'd been sitting up all night in pain, unable to recline. He had a large collapsed lung, reducing his lung capacity by 1/3. He was admitted to hospital. His 2nd night was the same, no sleep as he sat folded over in bed due to the pain. Sharp stabbing is how the medical team and pateints describe this. Pain relief was amped up and on day 3 he was finally able to lie back and sleep. Day 4 his pain went to a 10 level, there was a panic if it was his heart -- after a number of ECGs and xrays we knew his heart was ok. It was harrowing for Perry, and harrowing to witness so much suffering.

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  • May Update Part 2

      11 June 2024
    Posted by: Dawn Grace Kelly
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    This intense healing journey is profound in so many ways. We are discovering how strong we are, and how rock solid our faith is.

    This last month or so his days are spent sitting up on the couch with Tiger, and all his necessities. He's watching shows, listening to podcasts, music and meditations, a little drawing maybe, and lots of reading about life on the other side, NDE experiences, death and the nature of God.

    He is still eating when he is feeling it. In fact he has been asking for his fave foods lately.

    Special thanks to all my dear friends who have brought food -- at the end of a long day of running stuff to him, cooking at unusual times and doing all the things and admin of it all i am tired -- food is very much appreciated! (GF/DF, no chilli or dried coconut if you feel so inspired!)

    Hypervigilance is a thing for Perry and I currently, as there's been a number of shocks. We are all doing pretty good considering though.

    Going forward is unknown. He may get some more energy post infection, or he may be on a natural shift to transition from his body. Healing is happening regardless. We are all learning so much about ourselves during this extended ceremony of Perry's.

    We LOVE LOVE LOVE your prayers and love coming in. THANK YOU!

    We feel you, as, after all - we are all God of course -- it is happening to all of us. Just like death is -- we all will die in right timing.

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  • May 29 Update Part 1

      11 June 2024
    Posted by: Dawn Grace Kelly

    It's been awhile since I updated you on Perry's health as it's been unclear exactly what's happening. His condition is rare, with some unusual secondary issues, so trial and error is often in play.

    He hasn't been so well this year. He has had to move to a hospice bed at home to help with severe reflux. We have a wheel chair for when he is well enough to walk a little to the car. His breathlessness is extreme - he cannot carry anything, stand (he can walk to the bathroom when he feels well enough only) or talk for very long. Sometimes even listening is hard as he is needing full concentration to regulate his breath. He does use a little supplemental oxygen sometimes. We have a walking frame for home to push him on sometimes.

    He has lost a lot of his muscle and lots of weight.

    We recently discovered he had a new infection from an unusual bacteria, looks like he had pneumonia -- on top of a severe breathing issue! Strong antibiotics were necessary, yet they were tough for him too. We're waiting to see how he lands now this has passed.

    He is still able to get in an out of the bath, but it is exhausting, so oxygen must be in place for that mission - it helps a little only.

    Perry is doing hard work focussing, sometimes for hours, on clearing mucous that blocks his airways. There have been some harrowing middle of the night alarm calls where i have held space while he has been terrified for his life.

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  • Part 2!

      1 January 2024
    Posted by: Dawn Grace Kelly
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    I sense Perry resting more, then some recovery of health. Let's all pray for that!!

    I wish you beautiful beings the best year ever✨💙

    Thank you , all of you, for your prayers, offerings, donations and words to support us.

    Our collective connection as sparks of the God force is beautiful -- the way we love one another, despite not even knowing one another in many cases, is profound. Thank you for your love. It has enabled Perry to continue, to date, with his non-funded treatments, that are vital.

    Please share our Give a Little page -- we hope for Perry to continue his treatments past the mid year mark (we we are currently at) that are bringing him stability, while i work on keeping the mortgage and all the things rolling solo-style.

    We love you all!

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  • Happy New Year!

      1 January 2024
    Posted by: Dawn Grace Kelly
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    🥳Happy New Year friends! ✨

    2024 is so welcome after the most challenging year of our lives in 2023.

    Our partnership is so very different to how it was when Perry still had full breathing capacity. There has been much to grieve. And we are grateful for small wins.

    He is very limited to what he can do, particularly these last 6 weeks with a secondary issue bringing daily 'attacks', where, terrifyingly, he feels like he is choking, and it takes great focus for him to move through this. We now have new treatments on board for this. Moving from sitting to lying uses a lot of breath, as does a walk down the hallway.

    We work towards peace, calm and presence. May 2024 bring us all more of that!

    I am aware that these challenges are bringing karmic balance, as well as incredibly powerful growth opportunities for us all. There are triggers to old issues to heal, patience and grace to foster & resourcing self to get better at. I am learning to do jobs that perry used to do. And we're both grieving many things that we don't have now. (like going for a walk)

    ..........as I run out of space here, i will wrap this update up in a 2nd update :)

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  • How's Perry?

      15 November 2023
    Posted by: Dawn Grace Kelly

    Perry is adjusting well to not working for the first time in many years. It was challenging at first though! His health is stable. There are many good days, and a few not so good days, plus the odd whiz up to ER to make sure all is well, which it is. For the most part he has energy to do light work on our property, he has even mown the lawn! That's a big deal, as he wasnt able to do that earlier on this year. His last pulmonary function test showed some improvement, which is encouraging. It's a tricky jounrey to know exactly what is happening inside his lungs though. His breathing is still heavily compromised, yet he is generally managing this well. He's nebulising glutathione, (which helps clear mucous and mops up free radicals from the oxidative stress his condition entails) This helps reduce further scarring. It opens up his airways and makes breathing easier. Perry was DEEPLY touched when donations started coming in. He could literally feel the energy of the love and support touching him - that level of care was powerful for him to experience -- so wonderfully healing in itself! Thank you so much for sending your love, support and generosity. At this stage we're able to stay in our family home, and fund Perry's treatments, which makes life easier for Perry to concentrate on his healing journey. Bless you all! love Dawn

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