Let's lighten the load for Kirsten's family and help her achieve a better quality of life.
Rotorua, Bay Of Plenty
Some of you may know Kirsten has had a rough 12 months due to ill health, in the last 6 months Kirsten has spent more time in hospital then out. Kirsten has an autoimmune disease called Felty's Syndrome, when she catches any bug, she suffers about 10 x worse then a "normal" individual which is hospitalising her lately.
She is one of the most generous, giving people I know. She would take the shirt off her back for anyone and she will suffer in silence. Doctors here are baffled, they are treating her each individual symptom rather then helping the disease, oral antibiotics don't cut it anymore and I.V antibiotics only really seem to treat for a short period of time. Recently they have been told that they now have to wait to see a autoimmune specialist in Auckland where she will receive an unfunded drug pembrolizumab that will cost them $100,000 per year. This is a life threatening disease and without this things aren't looking very promising. This is a huge burden on any family and if we can lighten the load for them, then we as the "Bangs" village are giving back the generosity that Kirsten gives out every day.
So today I ask you, instead of buying your coffee or lunch you put that towards a good cause and help Kirsten get that one step closer to living a better quality life.
The Bangs family are a tough tight knit family, while this is tough on Dave and the kids, not having their leading lady about, they continue to soldier on through silently. Let's help this family!
I am employed by Kirsten and have watched her suffer from this horrible disease.
Unfunded drug for Felty's syndrome (pembrolizumab).
As per our more recent update 6/11- funds will now also be used towards getting Kirsten to Australia including flights and accommodation, private medical tests, private consultation fees
Brisbane here we come! 6 November 2023
As a family we have decided to seek another opinion to see if there are alternative options to what is currently being offered.
Today Kirsten had her first appointment via video with an immunologist in Brisbane. The appointment was totally overwhelming but we are very grateful for his insight and ideas.
Basically, Kirsten is far too complicated and her care is being transferred to a professor at The Wesley Hospital in Auchenflower, Brisbane, he is dually trained as a rheumatologist and immunologist. The tests and treatment options this doctor has available to him far exceeds anybody in New Zealand and Queensland.
Our immunologist has been in contact with a specialist at Auckland Hospital who basically said that people like Kirsten die in our country as the complexity of her exceeds any technology and treatments available.
We have been warned that Kirsten's treatment will most likely exceed $100,000 per year and she needs to get to Brisbane urgently!
Funds will now also be used towards flights and accommodation, private medical tests, private consultation fees in Australia
Your message will be displayed on the page and emailed to the donor.
Your new message will also be emailed to the donor.
Saving a blank entry will delete the current comment.