Zoe's WHS Conference trip
Raising money to be able to attend Zoe's conference being held in Australia
Marlborough
my daughter Zoe, is now 13 years old - she has Wolf Hirschhorn Syndrome and was diagnosed when she was 5 weeks old after discovering she was missing her soft cleft palate... she was given 1 year - and here we are 13 years later... she is a remarkable child :-) The whole family really benefits from the WHS conferences that are held by a WHS family every other year - this next one is in Port Maquarie, Australia in October... We are raising money so that we can take Zoe over to this conference and continue to connect the other families with the same syndrome...
Use of funds
flights, accommodation, meals, transport and group activities organised by the conference - if we end up raising more money than we need we will gift the money to other families at the WHS conference
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