Running a Marathon to raise funds and awareness for ME/CFS
Nelson
Zest for life fund was started in memory of my best friend Zascha Mann who died in July 2021 after suffering a long struggle with Myalgic Encephalomyelitis (ME), also known as Chronic Fatigue Syndrome (CFS) . I had to watch him go from one of the most active people I know, to a shell of his former self, bed-ridden every day.
Zest was started to raise money for other sufferers of chronic fatigue in the Nelson region with everyday needs and support.
To raise funds and awareness, I will be running my first marathon (hopefully with a team of supporters) in the Auckland marathon in November 2025.
"Fiercely be your authentic, wonderful,
weird selves. The world needs more
authentic humans ... and please do what
you can to make the world a better place,
it needs people to fight for it." - Zascha Mann, 2021
Zest for Life was created in memory of my best friend Zascha Mann who lost his life to ME/CFS.
The funds raised for thethe Zest for Life Fund will be used for such things as assistance with driving to appointments, help with housework, cooking and advocacy, or respite care.
Words from Zest 9 November 2025
On behalf of the Zest for Life Trust I want thank you so much for your donation, and also to acknowledge Sam’s zestful effort in achieving this run and dedicating his fundraising to our trust. We feel so strongly about the importance of recognising those who have sometimes been called ’the invisible ones’ - people experiencing ME/CFS and fibromyalgia, silently suffering with little energy to look after or advocate for themselves. We want to see them and support them.
Our trust is a perpetual fund i.e. our capital is invested and we distribute interest earned, and in the next few months we hope to begin reaching out to people in the Nelson and Tasman districts and distributing some grants. We will keep fundraising into the future to grow our fund and would love support from anyone who has bright ideas or energy to help us with this. One idea is to get a team going for running events in our district next year (with Sam as our esteemed leader!) and we’d also like to run another big cycling event at the end of summer if we can get a team of volunteers. Please let me know if you have the capacity and enthusiasm to be involved.
Once again thanks for being wonderful and supporting Zest for Life.
Stay Zesty! ~ Ange Palmer
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