NZORD, the New Zealand Organisation for Rare Disorders, provides New Zealand's central starting point for information about rare diseases.
Brittany runs a marathon 🏃
- $1,327.50 donated
- 24 generous donors
I'll be raising money for the New Zealand Organisation of Rare Disorders by running a marathon in September.
I've always thought running wasn't my gig, especially not for 42.2km. Yet here I am, having signed up for one in September.
Every day, families are affected by health conditions and the diagnosis of genetic disorders they would have never anticipated. Many of these disorders are so rare, no one else in New Zealand may be diagnosed and it can be so difficult to find support from people that have experienced these or have knowledge of these disorders.
I might hate running, but for 14 weeks, then a grand total 5 hours (here's hoping) I'll be able to make a difference to families that often have a lifetime of difficult times and hard situations.
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I intend to study as a genetic counsellor, and raising money for families that have children with rare disorders is something I would be honoured to do.
All funds raised go to:
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