CF Awareness Week - 13-19th August

$380 donated

Given by 9 generous donors in 22 days

Help our CF families by donating. This helps provide essential equipment and other vital support services to minimise the burden of CF.

Auckland

Please join us on cystic fibrosis (CF) Awareness Week to achieve as many steps for CF as you can! We hope to raise 30k!

Like most people, CF is something that we had never heard of before Portia’s diagnosis at 6weeks old.

CF makes Portia’s mucus thicker and sticker then ours, which means she is more prone to infection.

Portia also needs to take enzymes with her food. This is so she absorbs the fat and nutrients, or she would not thrive and put on weight. Portia has up to 25 pills a day. Her diet is the opposite to your food pyramid - she needs a high fat, salty diet and 3 times the amount of food to put on weight.

Twice a day Portia does physiotherapy - this is by a form of nebuliser and blowing into a device that helps clear and strengthen her lungs. This is called PEP. We do this before school and before she goes to bed.

Other then that Portia is a happy, healthy girl who has a progressive health condition that no one would ever know by looking at her.

We are so lucky that Portia’s health has been so good. We know first hand of families who are on a harder journey then us, and Portia’s health with CF complications can progress at any time.

Thanks for taking the time to read - every dollar helps support of CF families.

CFNZ's involvement (page creator)

Our little Portia who is 6 years old has Cystic Fibrosis. She has learned to live with CF and does us all so proud. We appreciate all your support over CF awareness week, and throughout our CF journey.