A Big Thank You
15 May 2022
The weeks have flown by since my South Island ride. I have been in contact with Kids with Arthritis New Zealand to ask how the funds given by you all would be used.
They have a wish list and I chose this one, for which there is a budget of $20,000.00 of which there is a $5000.00 shortfall.
Your fundraising efforts amounted to more than this, and I am sure there will be overruns in the budget for this project that we can help with.
Thank you again on Behalf of Kids with Arthritis NZ
Adrienne Crowe
"Primary Age Juvenile Idiopathic Arthritis (JIA) Book
Currently there is a book that rheumatologists provide for teenage children to explain their arthritic condition. However, there is no appropriate book for younger children.
Our intention is to engage a writer and illustrator to write and illustrate a new book for the younger children that we will then publish and make available to rheumatologists to give to newly diagnosed families.
We will be involving the National Paediatric Rheumatology Team from Starship Hospital and a paediatric rheumatologist in Whangarei who we have a strong relationship with when developing the content of the book."
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Great idea. 😁
