Main image

LDNZ Sanfilippo Research Fund

Closed Fundraiser page created in the Health category by John Forman


$230 of $35,000 goal

Given by 6 generous donors in 3 months

Share   Closed

Supporting NZ research into Sanfilippo disease. Top quality research at Massey University points to effective treatments for patients.

Main image

Research Treatment Sick Kids

Sanfilippo disease is a severe neurological disease that appears in childhood. After a period of normal development, affected children lose language and other skills, suffer prolonged periods of agitation and hyperactivity, then go into a long period of decline before they die, usually in their teens or early adult years. Research on Huntaway dogs with Sanfilippo is discovering methods to deliver therapy, but there are significant cost to be met to breed, feed, house and care for the dogs between research grants. Help us make a difference for the next generation of kids like Cody and Joanne.


Latest donations

  • Guest Donor

    Guest Donor on 28 Jul 2016

    $100

    Wishing they find a cure for this Jo & Ben. You never know, it might be in time for Cody??

    $100

  • Guest Donor

    Guest Donor on 27 Jul 2016

    Private

    Private

  • Guest Donor

    Guest Donor on 27 Jul 2016

    $50

    $50

  • Guest Donor

    Guest Donor on 21 Jul 2016

    Private

    Private

  • Guest Donor

    Guest Donor on 20 Jul 2016

    Private

    Private

Page created by

John Forman

Individual
Wellington

I'm the chair of Lysosomal Diseases NZ, a charity that provides information and support to families, and supports research into Sanfilippo and related diseases. We are raising funds to support important research that is happening right here in New Zealand. Researchers at Massey University have been working with other international experts on this disease, using a colony of Huntaway dogs that are affected by this disease. The research aims to discover the best means of delivering life-altering drugs into the central nervous system.

All funds raised go to:

Got a question?

Ask one here.
$230 of $35,000 goal

Given by 6 generous donors in 3 months

  Closed

Donor Confidence Key  

Concerned? Report this page
Closed on 31 Oct 2016

Got a question?

Ask one here.

The link has been copied

×

Donor Confidence Key

Givealittle moderation

Givealittle values the importance of an informed decision when making a donation. We check to make sure that adequate information is provided to donors and that pages comply with our terms and conditions. Pages are not browseable nor searchable until moderated and donor validated. For more information, check out this support article.

Donor validation

A page becomes donor validated when it receives donations from at least three different sources. Pages are not browseable nor searchable until moderated and donor validated. For more information, check out this support article.

New Zealand registered charity

Is registered with the Department of Internal Affairs (DIA), Charity Services (formerly Charities Commission) as a charity.

Tax credit eligibility

Has been granted 'donee status' by Inland Revenue (IRD). Donors to a page with tax credit eligibility may be able to apply for a tax credit.

×

Share

Share a link to this page with your friends or family
  Facebook

  Twitter

  Email

  Copy Link

  Embed

×