Petra is running the 2019 ASB Christchurch 10k Run to raise awareness and funds for the NZ Williams Syndrome Association
Canterbury
This year I am running the 2019 ASB Christchurch 10k run to raise awareness and funds for the NZ Williams Syndrome Association.
I knew very little about Williams Syndrome until just recently, when a mate brought the condition to my attention. I hope that an increase in awareness will enlighten more people to the effects of Williams Syndrome and create a more accepting environment.
Williams Syndrome is a genetic condition that is present at birth and can affect anyone. It is characterised by medical problems, including cardiovascular disease, developmental delays, and learning disabilities. These often occur side by side with striking verbal abilities, highly social personalities and an affinity for music.
Babies with Williams Syndrome may have life-threatening cardiovascular problems. As they grow, they struggle with things like spatial relations, numbers, and abstract reasoning, which can make daily tasks a challenge.
As adults, most people with Williams Syndrome will need support to live to their fullest potential. As people with Williams Syndrome mature, they often experience intense isolation which can lead to depression. They are extremely sociable and experience the normal need to connect with others; however people with Williams Syndrome often don’t process nuanced social cues and this makes it difficult to form lasting relationships.
Funds raised through this event will go towards the expenses associated with running biannual Williams Syndrome camps. Every two years the NZ Williams Syndrome Associations (NZWSA) holds a national family camp. This is the primary ‘gathering’ for the group and is eagerly anticipated by the members of the association. The camps are usually attended by 120 – 180 people. These camps are greatly beneficial for people with Williams Syndrome, parents and siblings.
Funds are being raised for the NZ Williams Syndrome Association
Runners and walkers are participating in the ASB Christchurch Marathon on the 2nd of June to raise awareness about Williams Syndrome
Thank you!!!! ❤️❤️❤️
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