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Running for Little Mia

Closed Fundraiser page created in the Health category by Erin McKenzie


$2,000 of $500 goal

Given by 34 generous donors in one month

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Lysosomal Diseases New Zealand is a charitable trust dedicated to improve contact between families affected by lysosomal diseases within Ne

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Treatment

Little Princee (the way she pronounces princess) Mia passed away in 2013 aged 3 to a rare Lysosomal Disease called MPS1 or Hurlers. Lysosomal diseases are inherited genetic defects resulting in enzyme deficiency which prevents cells from performing their natural recycling function leading to a variety of progressive physical/mental deterioration.

Lysosomal Diseases New Zealand is a charitable trust dedicated to improve contact between families affected by lysosomal diseases within New Zealand, and supporting research into the causes and treatment of lysosomal diseases and improvements in the clinical care of affected people.


Latest donations

  • Guest Donor

    Guest Donor on 30 Mar 2014

    Private

    Private

  • Fiona Anderson

    Fiona Anderson on 29 Mar 2014

    $110

    In loving memory of Mia.

    $110

  • ian dickson

    ian dickson on 29 Mar 2014

    $750

    Thank you for your efforts Ethan,Hayley,Erin .From MIAS family &friends in Australia.

    $750

  • Guest Donor

    Guest Donor on 29 Mar 2014

    Private

    Private

  • Sarah, Kyle, Nicholas, Beverley & Bruce

    Sarah, Kyle, Nicholas, Beverley & Bruce on 29 Mar 2014

    $100

    With love for the most beautiful little girl ever !

    $100

Page created by

Erin McKenzie

Individual
Nationwide

Little Princee (they way she pronounces princess) Mia passed away in 2013 at 3 ½ to a rare Lysosomal Disease called MPS1 or Hurlers.

Lysosomal storage diseases are inherited genetic defects that result in an enzyme deficiency, which prevents cells from performing their natural recycling function. This leads to a variety of progressive physical and/or mental deterioration. Approximately 180 New Zealand families are currently affected. The effects of Hurlers especially, is heart breaking not only for the ones suffering from it but for their families as well.

Mia is such a beautiful angel and was a very strong fighter xxxx Ethan Hayley and I are hoping to raise some money to help Lysosomal Diseases New Zealand. Lysosomal Diseases New Zealand is a charitable trust dedicated to improve contact between families affected by lysosomal diseases within New Zealand, and supporting research into the causes and treatment of lysosomal diseases and improvements in the clinical care of affected people.

In little Princee Mia’s memory we are running in the Colour Run on the 30th of March, so please help us raise a little bit to help other families in need.

All funds raised go to:

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“All the best for your efforts.”
“Have fun on the fun and good luck with the fundraising”
“You guys are amazing to do this special thing for our beautiful Mia and LDNZ who are just a small organisation who fight hard for families like ours. Thank you Hayley, Ethan and Erin, and big hugs from us!”
“All the best for the fundraising efforts. Good work. You efforts may well save a childs life.”
“Thank you so much for your fund raising effors on behalf of Mia, my dearly loved and missed Grandaughter. Lyndsay Kelly.”
“All the best for the run! We will always love and miss you Miss Mia xxx”
$2,000 of $500 goal

Given by 34 generous donors in one month

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Closed on 30 Mar 2014

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Is registered with the Department of Internal Affairs (DIA), Charity Services (formerly Charities Commission) as a charity.

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