Running for Little Mia

Little Princee (the way she pronounces princess) Mia passed away in 2013 aged 3 to a rare Lysosomal Disease called MPS1 or Hurlers. Lysosomal diseases are inherited genetic defects resulting in enzyme deficiency which prevents cells from performing their natural recycling function leading to a variety of progressive physical/mental deterioration.

Lysosomal Diseases New Zealand is a charitable trust dedicated to improve contact between families affected by lysosomal diseases within New Zealand, and supporting research into the causes and treatment of lysosomal diseases and improvements in the clinical care of affected people.