Support Tom in his Climb for Tuberous Sclerosis Complex
Nationwide
Tuberous Sclerosis Complex is a rare genetic disorder. On April 9th I climbed Mt Maling [height 1825 metres] in the South Island - to raise money for TSC. A big thank you to everyone who has donated so far - and to all the family members who supported me on the climb!
My sister Jo lived with TSC for over 60 years. And I'm a committee member for TSC NZ - a registered charity run largely by volunteers. We rely on donations to provide information and support to families affected by TSC.
You can find out more about the work we do at TSC.org.nz
Your donation will help us continue to
- Provide email and phone support for TSC families
- Maintain our website
- Hold conferences and seminars for families and healthcare professionals
- Advocate with Rare Disorders NZ to improve access to best practice care.
New TSC_NZ Newsletter Out Now! 28 April 2025
Find out more about what my colleagues and I are up to at TSC_NZ in our latest newsletter at https://mailchi.mp/c6633fe27fa1/tscnz-newsletter-apr2025
And that’s a lovely thing you’ve done too thank you Simon!
Thank you Emily!
Thank you so much Col and Norm!
Thank you GG Donor. As you know, I dress for success 🤭
Thank you Marg. Much appreciated!
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