Swim Bike Run 4 Cystic Fibrosis

Cystic Fibrosis (CF) is the most common life threatening genetic disorder affecting New Zealand children. In a snapshot it is a nasty disease where the body produces too much gluggy sticky mucus affecting vital organs (lungs, pancreas, liver etc.). While the prognisis and treatment for people with CF is always improving there is always more that can be done and better ways to support the people with CF and their families.

I know a bit about CF as my sister, Rebecca, had it, and my family knows what a deblitating disease it can be to live with on a day to day basis (not that it stopped Rebecca doing stuff as the picture shows!)

Shortly after Rebecca died I remember reading the CF News and articles about family members who had done Ironmen / Half Ironmen to raise money and awareness for CF, and I thought to myself one day I am going to do that for Bex - and that day will soon be here (eeeek), 18 February to be exact down in Wanaka.

Cystic Fibrosis NZ provide equipment essential for people with CF, information and education, peer support, emotional and financial support to families etc.

http://cfnz.org.nz/team-contacts/regional-network/cf-canterbury/