A Rare Kind of Walk

$5,190 of $5,000 goal
Given by 63 generous donors in around 3 months

Fundraising for Rare Disorders NZ

Mount Eden, Auckland

A few years ago I ran my last half marathon. A rare metabolic disorder has robbed me of the ability to keep running, but it has opened up some other new and incredible opportunities. I now volunteer for Rare Disorders NZ, working on behalf of the 300,000 kiwis living with a rare disorder - and their families and carers - to improve healthcare, support, and education throughout the country.

Maybe I can't run. But I reckon I can walk. So that's what I'm going to do. I'm going to walk a loop around Mt Eden, a beautiful maunga in the centre of Auckland that I used to love running up, and I'm going to see whether I can do it 10 times. How far is that exactly? About the same distance as a half marathon.

March 2024 is Rare Disorders Month, a month in which we celebrate people with rare conditions, raise awareness, raise money, and raise our voices to ensure that vulnerable people - often living with chronic illness and disability for which there are no available treatments - can get a fair go. The month kicks off on Rare Disorders Day - this year that will be on the rarest of days, the 29th of February. One month later, on the 30th of March, I'll do my walk, bringing our month of events to a close.

Join me - by walking a few loops of the mountain with me on the day, by donating right here and now, or by sharing this page with your friends and loved ones.

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Latest update

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Target achieved!  30 March 2024

I start the walk in one hour from now, and a couple of special people just tipped us over the $5k target. I know one of them was just waiting in the wings for this moment so he could claim all the glory but it is very special anyway!

Here's an awkward selfie of me walking around Mt Eden from the day I cooked up this crazy scheme. 2 months later and it's a beautiful day today in Tamaki Makaurau - come out and enjoy it with me if you can, or share the campaign one last time with family, friends, doctors, influencers, politicians, or just the people at your local cafe.

Thanks everyone for making this happen.

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Latest donations

Richard
Richard on 31 Mar 2024
Hope the walk went well!
$50
James
James on 30 Mar 2024
What a great day James. Perfect weather and a good crowd to cheer you on as well. My boys appreciate the opportunity to go around the mount I was a bit worried there short legs would slow your pace, so appreciate the pause for them to catch .I've made an additional donation as we've taken one of your t-shirts. Lovely design for a great cause.
$20
Guest Donor
Guest Donor on 30 Mar 2024
Private
Frances
Frances on 30 Mar 2024
Private
Karla
Karla on 30 Mar 2024
Relap relap. Great cause. Best of luck!
$50

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James McGoram's avatar
Created by James McGoram
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This page was created on 10 Jan 2024 and closed on 10 Apr 2024.