Chronic Lymphocytic Leukaemia

A number of New Zealanders with CLL are alive and well today because they’ve been able to access life-saving therapies. They’ve survived either through good fortune (compassionate access programmes or clinical trials) or because they were able to pay for treatment themselves. They are enjoying fulfilling and productive lives. Others have not been so fortunate. CLL Advocates NZ exists to draw attention to and address this fundamental inequity.

We are a very small group of individuals affected by CLL and medical specialists active in the treatment of CLL, who want to:

• empower patients to advocate for and gain access to world-class treatments for CLL

• build public knowledge and understanding of the potential of modern CLL therapies to transform and save lives

• encourage the development of NZ guidelines to ensure equitable access to best practice treatment for all CLL patients, irrespective of geographic, ethnic, or socio-economic differences

• promote and support NZ-based research on CLL, including the value and importance of developing and participating in clinical trials, and improving the quality of NZ data on CLL

• build awareness of accessibility and funding models in use in comparable countries, and

• form connections internationally with other CLL patient groups and advocates