Huntington's Disease Youth Organisation of New Zealand (HDYO NZ)

We are the Huntington’s Disease Youth Organisation of New Zealand (HDYO NZ), a newly formed organisation with the goal of supporting, educating, and advocating for young people affected by Huntington’s Disease.

Our vision is for the youth of New Zealand impacted by HD to be knowledgeable, supported and empowered through a strong community, support network and accessible information.

The purposes of HDYO NZ are:

SUPPORT

(a) To provide a community and support network for NZ youth impacted by HD through accessible information, web based communities, and development of HDYO NZ.

(b) To identify and promote other beneficial support services

EDUCATE

(a) To increase knowledge and awareness of HD

(b) To provide age specific (children, teens, and young adults) user friendly resources and information in a high quality professional manner

ADVOCATE

(a) Listen to and advocate for the needs and goals of youth

(b) Increase public awareness and understanding of the disease and promote Huntington’s disease research

COLLABORATE with other organisations, associations or societies whose purpose is similar to those of HDYO NZ.

SEEK FUNDING for the sustainability of the organisation.