Prader-Willi Syndrome Association NZ

Prader-Willi Syndrome Association NZ

This page is to support the PWSA(NZ), to help us improve and extend services that support people living with PWS and their families.


This page is fundraising specifically for the PWSA(NZ). If you wish to donate or fundraise for our PWS research page on Givealittle, please use this link-

PWSA(NZ) aims to improve the quality of life for all individuals living with PWS in New Zealand. We do this through advocacy, education and support. We advocate for individuals and families on the issues they are facing and the needs of the PWS community. We provide advice, resources and training to families, schools, support service providers and other professionals. We facilitate a support network for families and people living with PWS, and we bring the community together through events and collaborations.

Here are some examples of how your donations can help:

* As PWS is a rare syndrome, families are geographically isolated and have little opportunity to meet. Your funds might contribute towards bringing families to a family camp, a youth weekend or a young families weekend for parents of newly diagnosed children.

* Adults living with PWS are keen to connect socially and be involved in self-advocacy and peer support projects. Your funds could help us to facilitate this.

* Your funds may enable us to offer more training courses and support workshops, or invite an expert, specialist speaker to present at a seminar.

* As times change, more is learned about PWS and new information regarding best practice and management needs to be disseminated. Your funds may contribute towards updated publications, distributed guidelines, or new library resources.

More about us

PWSA(NZ) aims to enhance the lives of New Zealanders living with PWS and their families by providing advocacy, education and support services. We strive to improve standards of care, treatment and support for all people living with PWS.

Use of funds

Please talk to us if there is something specific you would like your funds to go towards.

Read more

Latest donations

Clara on 02 May 2024    For Charlie & families with PWS.
Private Donor
Private Donor on 11 Apr 2024    For Charlie & families with PWS.
Ellen on 09 Apr 2024
In honour of Greta and Ben, Neoma and Wolfram. Congratulations <3
Jar on 07 Apr 2024    For Charlie & families with PWS.
Rory on 07 Apr 2024    For Charlie & families with PWS.
Great work. Lots of love Charlie from the Futter Whanau. Rory, Hannah, Tommy & Leo
Craig James

Thanks you so much!

Craig James

Who's involved?

Prader-Willi Syndrome Association NZ's avatar
Created by, and paying to a verified bank account of, Prader-Willi Syndrome Association NZ (Charity)
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A Registered Charity has legal recognition under the Charities Act 2005.
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Donations of over $5 are eligible for a New Zealand charitable giving tax credit.
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