Prader-Willi Syndrome Association NZ

This page is fundraising specifically for the PWSA(NZ). If you wish to donate or fundraise for our PWS research page on Givealittle, please use this link- https://givealittle.co.nz/org/pwsresearch

PWSA(NZ) aims to improve the quality of life for all individuals living with PWS in New Zealand. We do this through advocacy, education and support. We advocate for individuals and families on the issues they are facing and the needs of the PWS community. We provide advice, resources and training to families, schools, support service providers and other professionals. We facilitate a support network for families and people living with PWS, and we bring the community together through events and collaborations.

Here are some examples of how your donations can help:

* As PWS is a rare syndrome, families are geographically isolated and have little opportunity to meet. Your funds might contribute towards bringing families to a family camp, a youth weekend or a young families weekend for parents of newly diagnosed children.

* Adults living with PWS are keen to connect socially and be involved in self-advocacy and peer support projects. Your funds could help us to facilitate this.

* Your funds may enable us to offer more training courses and support workshops, or invite an expert, specialist speaker to present at a seminar.

* As times change, more is learned about PWS and new information regarding best practice and management needs to be disseminated. Your funds may contribute towards updated publications, distributed guidelines, or new library resources.