Glioblastoma Dendritic Cell treatment for Deb
Masterton, Wellington
An ordinary visit to the optometrist complaining about how her glasses cut off her peripheral vision, lead to a diagnosis of Glioblastoma (Grade IV brain tumour) for Mum in June 2024. She then had a craniotomy followed by chemo and radiation.
This is not a well funded or well researched type of cancer, and being in New Zealand has meant that we have even less options than most. After our last scan which showed regrowth, we were advised no further surgery is available to us, and there aren't any options left for us at home.
After a lot of research, we are heading to Germany in September 2025 for dendritic cell treatment, there is a lot of information out there and this is the treatment we feel is the best move forward. There is no cure for this cancer yet, we can only do our best at keeping it at bay. Dendritic treatment aims to have your immune system identify and attack the cancer cells. The downside for this treatment is the initial upfront costs, time away from home, and then ongoing maintenance + costs. Due to the cost of this and offers of help from many, we have set this page up as a way for people to assist in this process if they wish.
We remain optimistic and Mum's only symptom is the slight vision loss. We hope to keep it that way!
We greatly appreciate your support through this time, updates to be posted on the page as we feel ready to share. As a family, we do keep things a bit private so it has taken a bit to swallow humility and ask for help in this process.
Deb is my mum
Dendritic cell treatment and costs associated, such as travel and maintenance.
Celebrating the best news after surgery! 20 September 2025
Germany gave us some new hope with laser ablation, a less invasive surgical option to remove the tumour.
When we had the first MRI our heart sank when the doctor said usually they would only consider surgery if they could get 97% and their surgical planning put Mum at only 92%. However, because Mum's also doing immunotherapy, our surgeon called our immunotherapy doctor and decided to go ahead as even opening the blood-brain barrier and removing as much as possible would be beneficial.
After the surgery, the doctor said that it went better than expected and they were really chuffed with how it went.
On Thursday, we had the week follow-up and finally got the removal percentage. 98%!! Best bloody news we could have hoped for 🥳.
Feeling really lucky to have these medical options available to us and that the doctors from different hospitals and had never spoken to each other previously, just worked so completely in with each other and had genuine interest in how the other worked. While in the hospital after surgery, the immunotherapy doctor popped in to give mum her first vaccine of immunotherapy. We now have a 3 weeks off while Mums cells start recognising the remaining cancer cells and get to fighting them!
Home and recovering, its a bit slower days for Mum at the moment but have settled into our own little flat in Cologne which we'll stay put in until we leave in November.
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