A life worth living - Updates - Givealittle
10 year wedding anniversary 22 January 2019
Emily, Chris, the girls joined by friends and family celebrated their 10 year wedding anniversary. Emily’s experienced a lot of muscle loss due to the steroids, this is making it hard for her to get around but she enjoyed seeing everyone and being able to be there. Here are some pictures from the day.
Merry Christmas from Emily 22 January 2019
Emily is home for Christmas 24 December 2018
Pain management via hospice care 22 December 2018
Hello everyone, an update on Emily. She’s been back in the hospital this week to get help managing the pain. They moved her to hospice care to give her a more comfortable environment while they navigate the strong medication they need to give her to relieve the pain in her brain. Everyone is hopeful she will be back home with her husband and girls by Xmas. This page and your generous donations are a huge relief to them, thank you for your continued support. Merry Christmas and enjoy your loved ones! X
sever headaches lead to brain surgery 12 December 2018
After trips to the ED and too many steroids Emily had to move onto Morphine tablets. The severe headaches flared up again and today she was flown to Wellington for surgery to put a brain shunt in. This involves a tube being put into her brain cavity which drains the fluid away to her stomach through a small tube they insert from my brain. She'll have to stay in Wellington for 3-5 days and is already missing her family. The surgery went well with no problems. Thank you for all of your support.
The next battle 3 December 2018
A week ago I found out that unfortunately there is progression in my brain. This means the further treatment I need are the pricey ones! The non funded drug, Kadcyla, which is capped at $60,000. But this does not include any private oncology treatment costs so likely to be closer to $100,000. The other potential option is more gamma knife treatment. Approximately $30,000 each treatment. So now we are again playing the waiting game for scans, reviews and making new treatment plans. I am truly grateful for all of the generous donations we have received. Thank you!
only 4 more days to go! 10 November 2018
Emily & Family home from Auckland hospital 2 November 2018
Emily's dad has fixed up & posted a Triumph car for sale on Trade Me funds raised are for Emily 2 November 2018
Below is information on the TradeMe listing posted by Emily's dad. Have a read, visit, bid & support Emily while enjoying your adorable new car~ Kim
This very cool looking car has been rebuilt over the last 20 years with much work done in the last 12 months to get it all ship shape and ready to roll. I do not have a complete history of the car but what follows is what I know or have surmised.
Firstly this is not a true convertible but has a professionally made hood and no hard top. The odo is in miles.
At some stage (late 1990's??) this car has had the body work professionally restored and repainted. In 2001 at around 112000 miles the engine was fully reconditioned. My friends bought this car in 2003 when it had 111189 miles showing on the clock (I know it doesn't add up, maybe had a new speedo fitted?) While they owned it they replaced the fuel pump and brake master cylinder. The car wasn't used a lot but was bought out on sunny weekends and on other special occasions. Most of the time it sat in a shed. In 2012 my friend was diagnosed with incurable cancer. She put the car in the shed and returned home to Austria for treatment. In 2016 she died. Her husband gave the car to me to get roadworthy and sell and put the money towards treatment for my daughter (givealittle.co.nz/cause/a-life-worth-living) who also has incurable cancer :-(
In the last 12 months I have, replaced all brake slave cylinders, shoes and the drums on the rear. Sorted out the birds nest of wiring behind the dash. Replaced the diff output seals and bearings, replaced the driveshaft universal joints and fitted a prof. rebuilt gearbox. I have tuned the carburetor and timing and fitted a new battery. Yesterday it got a WOF and 12 month reg.
The car is not in original concourse condition. The paint has a few chips, the front seats are not original (but were fitted in the late 90's so don't need certs)and the heater is always on. It doesn't really like more than 80km/h. But who does on a sunny day. This car is easy to start and drives well. It looks cool and is fun to drive with the top down and is a perfect around town car. It is cheap to fuel and register.
What more could you want!
a little trip to Auckland hospital 28 October 2018
We are up in Auckland for Chris to run the marathon whilst I cheer. Although as usual things haven't gone to plan. Instead, yesterday I was admitted to Auckland hospital with severe headaches and vomiting. I've had a ct which showed a lot of fluid on the brain so I'm mega dosed with steroids and this morning I feel fine.
Docs are going to decide this morning if they want me to have any ops to remove the fluid otherwise I'll keep being dosed on high steroids. Hoping to be moved to the ward today as I'm currently in neurological icu while I've been monitored over night. An mri is planned for tomorrow then hopefully I'm allowed out. No idea about how we get back to blenheim but we'll hopefully back by Tuesday just a day later than planned.
Docs just visited. No op required yay! Being moved to the ward once there's a free room. Should be out tomorrow with truckloads of steroids 😆 ready for breaky now after not eating since Friday night!
Incurable breast cancer: Women denied access to drugs feel 'brushed aside'. 20 October 2018
Click the below article to learn more about the awareness and journey Emily is on battling to get the drugs she needs to prolong her life.
Please consider donating to Emily's page to help her seek the treatment she needs in Sydney Australia.