Adele has an aggressively growing tumour that needs specialised treatment in Australia. We are fundraising to help cover these costs.
Northland
Adele is fighting a rare and challenging Desmoid Tumour. She is in daily pain & fatigued as a result of this, she struggles with daily activities such as caring for her 1.5 year old daughter, bending & picking her up is difficult although she still tries. She also had to cease her work & close down her Newborn Photography business—a career she sorely misses. Additionally, her partner Jason, had to halt his work to provide support & care for their daughter.
The NZ health system is letting her down, the small sarcoma team are overwhelmed & keep running out of time each week to review her case. She found this tumour 6 months ago and it is growing rapidly (8x in volume in just 3 months) & she needs treatment now. She cannot afford to wait for the NZ hospitals any longer as soon it will be too big to treat effectively. They also cannot offer her the specialised cryo treatment she so desperately needs.
Adele has found a private specialist in Sydney who is her best chance for recovery. He offers cryoablation which has a great success rate & short recovery time, but she needs support to cover the cost. Adele needs your help to fund the treatment itself, necessary scans & travel-related expenses. Each treatment will cost approximately $25,000 & she may require multiple treatments.
Your generous donation will bring hope to Adele, helping her access the treatment she desperately needs. Let's unite to support her in this critical journey to regain her health, well-being & life back.
I am Adele's Mother and have watched her frustrating journey whilst she fights to receive the treatment she needs.
The money raised will be spent on her treatment, scans required and any travel costs associated with the treatment. It is unclear yet how many treatments she will require, but at a minimum she will need 1 treatment *** Update 14/12: Funds will be used to travel to Auckland for urgent surgery & anything needed for my recovery post surgery.
Not the news we want to share but here is an update. 14 December 2023
Hey everyone, unfortunately the tumour has grown so much that I am no longer a candidate for Cryoablation. To say I am gutted is an understatement as I have been doing everything possible to make it happen so that I get this treatment. But the universe has other plans.
I am being booked in for urgent surgery next week as it is pressing on my bowels and could cause an obstruction if left for any longer. I am scared of what this means for the future and how this will affect our lives but will take it one day at a time.
I wanted to check with you all because originally this fundraiser was to help me get Cryoablation treatment and cover the travel costs associated with this as well as the treatment. I had spent some of this on a private consultation, arranging our passports in anticipation and also on a homeopathic doctor and remedies to support and prepare my body for this treatment but most of it is largely untouched as we never got to book it all in.
We are hoping to use this money towards costs associated with my travel to Auckland & anything needed for my recovery post surgery. We wanted to check that this would still be ok with you all? There is still a chance that the tumor will regrow after surgery and I will need cryoablation then too. If anyone has any problems with this change of plans and would prefer we return your donation please get in touch with the Givealittle team by the 22nd December to arrange a refund.
Much Love,
Adele, Jason & Aurora xx