sooooo ajanas specialist has just informed us that she can no longer spend long periods of time in the sun more than 15 mins as this could make her become disorientated and confused and could lead to a more prolonged seizure.
Her medications have been uped to 3 different types and that's just for her seizures.
upcoming appointment for ehlers danlos in couple of weeks.
Thanks for the donations that have been placed :) Just a quick re-cap ajana has been back an forth to the hospital over this last month and has a appointment with neurologist from starship hospital to see if theirs anything else that can help make it easier we have been advised that ajana can only be exposed to the sun for no longer than 15 mins a day even being inside walking past the sun shining in is too much for her at this stage. Will update to let you know more after her apponitments.
This is a link about ehlers danlos syndrome https://fbcdn-sphotos-d-a.akamaihd.net/hphotos-ak-xpf1/v/t1.0-9/10173780_873011412732585_2170374666600969909_n.jpg?oh=167062db278901bfe51ffb83486a2683&oe=551A7864&__gda__=1424722958_cf5e0cdf51cae05a5b9219292d69a567
