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Chiari Malformation Type 1

Cause page created in the Health category by Lorien Bainbridge for Alexa Marsh


$42,267 of $50,000 goal
Given by 338 generous donors in around 7 months
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Alexa needs a major brain operation to fix Chiari Malformation Type 1

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  Bay of Plenty

What does Chiari Malformation Type 1 even mean? My best friend Alexa has had debilitating migraines for the 12+ years Ive known her. These have meant time off work, missed social events, only wanting to be in a dark room and to sleep, sometimes for days! After all these years she finally has an answer.. Chiari Malforation Type 1. This occurs when the section of your skull containing a part of your brain (cerebellum) is too small or is deformed, thus putting pressure on and crowding your brain. The lower part of the cerebellum (tonsils) is displaced into your upper spinal canal. If untreated a cyst could form on the spinal cord resulting in her becoming paralysed. This may not happen today, not tomorrow, not this year but there's no way we can run the risk. The only way to relieve the pressure on her brain is a serious operation where they basically remove a piece of her skull and top vertebrae, cut out a layer of her brain and insert a sling. The only way to have the surgery done is privately which comes at a cost... a big cost! As Alexa’s diagnosis is on the extreme scale the specialists involved have recommended this be done in Auckland.

Lorien Bainbridge's involvement (page creator)

Best Friend

Use of funds

Being able to have the operation done ASAP

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Latest update

Cost Increase   25 August 2020

Posted by: Lorien Bainbridge

Costs for the operation have now gone up again! Please remember this amount is payable before the operation can go ahead!

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Latest donations

Hannah
Hannah on 07 Feb 2021
All the best on a speedy recovery, take care.
$20
Guest Donor
Guest Donor on 20 Jan 2021
$10
Pete H, MDM Tga
Pete H, MDM Tga on 29 Oct 2020
Trusting for a totally successful op.
$100
Karen
Karen on 09 Oct 2020
Dear Alexa I really hope you are recovering smoothly Best Wishes Karen Phillips
Private
Tracey
Tracey on 24 Sep 2020
Hope you are feeling better Alexa 🌸
Private

Who's involved?

Lorien Bainbridge's avatar
Created by Lorien Bainbridge
Alexa Marsh's avatar
Paying to a verified bank account of Alexa Marsh

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This page was created on 18 Jul 2020 and closes on 19 Jul 2021.
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