Alice needs lifesaving surgery in Germany for her rare vascular compressions and needs your help to get there
Since August 2021 my health has been deteriorating. I have spent months in and out of hospital with no answers. Recently I was diagnosed with a number of rare and life threatening vascular compressions and other comorbidities like POTS that severely affect my health. Because of the compressions I live each day in extreme debilitating pain and am unable to eat or drink. I've been relying on a NJ feeding tube to survive for the last 2 years. I have lost 26kgs because of this illness and am struggling to put on weight. Before all of this happened I was a passionate competitive swimmer and enjoyed life and school. I was meant to be studying at Otago University this year, however I had to pull out under the advice of my doctors. Now I have no quality of life and live each day as a struggle.
I require surgery to fix these compressions however treatment is unavailable in NZ at this time. Due to the severity of the compressions and urgency for treatment I have been advised by doctors over here to look overseas to Germany for surgery. We are in the process of reaching out to Clinic Bel Etage in Düsseldorf and are also exploring other options.
Please help me fundraise for this as it is life changing surgery that will help me get my life back.
All funds raised will help pay for surgery, scans, flights, accommodation, physio, medication and any other health related costs
Surgery Dates!! 18 January 2024
We have had confirmation of surgery dates!! The scans with Prof Scholbach will be on the 6th of March and then I’ll be admitted on the 11th for surgery on the 12th which I’m feeling both nervous and excited for. It’s been a tough few weeks with pain and other symptoms but getting surgery dates is a big motivator to keep fighting. This wouldn’t be possible without all the donations and support we’ve had and we are so grateful to everyone so thank you!