Alice needs your help!!! Help Alice get her life back by raising funds for a lifesaving surgery in Germany

$126,583 of $150,000 goal
Given by 709 generous donors in around 7 months

Alice needs lifesaving surgery in Germany for her rare vascular compressions and needs your help to get there

Auckland

Since August 2021 my health has been deteriorating. I have spent months in and out of hospital with no answers. Recently I was diagnosed with a number of rare and life threatening vascular compressions and other comorbidities like POTS that severely affect my health. Because of the compressions I live each day in extreme debilitating pain and am unable to eat or drink. I've been relying on a NJ feeding tube to survive for the last 2 years. I have lost 26kgs because of this illness and am struggling to put on weight. Before all of this happened I was a passionate competitive swimmer and enjoyed life and school. I was meant to be studying at Otago University this year, however I had to pull out under the advice of my doctors. Now I have no quality of life and live each day as a struggle.

I require surgery to fix these compressions however treatment is unavailable in NZ at this time. Due to the severity of the compressions and urgency for treatment I have been advised by doctors over here to look overseas to Germany for surgery. We are in the process of reaching out to Clinic Bel Etage in Düsseldorf and are also exploring other options.

Please help me fundraise for this as it is life changing surgery that will help me get my life back.

Use of funds

All funds raised will help pay for surgery, scans, flights, accommodation, physio, medication and any other health related costs

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Latest update

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6 weeks post op  25 April 2024

Tuesday marked 6 weeks post op and honestly that time has flown by. I’ve been back home for 2 weeks which has been so nice although a bit tough mentally. The enormity of the surgery and the journey leading up to it has been a lot to process for both me and my family. The flight back from Germany really took it out of me and jet lag on top of that has made it a rough couple of weeks but things are starting to get a bit more normal. I’m managing to go on small walks most days which seems so crazy to me considering 6 weeks ago prior to surgery I could barely walk 100m without feeling like I was going to pass out from POTS symptoms or my leg giving out. For the first time in 2.5 years I’m not on any medication for my heart or pain which is such a great feeling and crazy even to my doctors.

It hasn’t all been positive and I don’t want to give people the wrong idea that I’m 100% better because in reality recovery is and has been tough and definitely not linear. There are days where I have random surgery pains and lots of tiredness as well as back and rib pain which can be hard not to get caught up on. There’s still a long way to go but looking back at where I was before the surgery and even 1-2 weeks post op the improvements are so insane. For now my focus is on recovery and continuing to build on my strength and eating. I look forward to slowly getting back to normality and being able to do more hopefully soon

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Latest donations

weihong
weihong on 16 May 2024
$10
Anna
Anna on 27 Apr 2024
Private
Guest Donor
Guest Donor on 04 Apr 2024
Amazing family. Wishing you Alice an amazing recovery
Private
Alice Williams

Thank you so much for supporting us on this journey!

Alice Williams
Guest Donor
Guest Donor on 04 Apr 2024
Hope you get better very soon Alice
$25
Alice Williams

Thank you 😊

Alice Williams
Nataliya
Nataliya on 03 Apr 2024
Everything will be okay 🤗
$30
Alice Williams

Thank you Nataliya 😊

Alice Williams

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This campaign started on 14 Nov 2023 and ends on 8 Jun 2024.