Amelia's Hope for Healing- Help our beautiful girl to get the surgery she needs for AVC's

For a year – since a few weeks before her 13th birthday - Amelia has relied on food fed through a tube to keep her alive.

But, over time, her tube feeds began to decline and she could no longer tolerate anything going into her stomach.

Five months ago, on New Year’s Eve, Amelia’s health further deteriorated and she was admitted to Waikato Hospital where she remains today. She is now fed by nutrition delivered intravenously directly to her heart and a small amount by tube into her small intestine. Her left leg is immobile which has left her bedbound and unable to walk since January.

The pain is relentless.

Amelia has been diagnosed with multiple abdominal vascular compressions that cause issues of blood flow, pressure and pain. The condition is rare and options for treatment in New Zealand are limited.

She needs to travel to Germany, where surgeons can correct the compressions. Other New Zealanders who have had the surgery report good results.

Maddy, who has spent all but a few nights of the past five months sleeping by her daughter’s hospital bed while her husband Joe manages the care of the couple’s two sons, says the New Zealand medics have been wonderful.

“But they can only do so much. This is our only chance to give our beautiful girl a chance for a normal, pain-free life again. No 13-year-child should be faced with having to accept this as how her life is now. We MUST try everything we can to get her back to eating, walking, dancing & living the life she was 12 months ago”